• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Acetylcholine Receptor

AndrewB

Senior Member
Messages
119
Location
England, UK
Ive just had my first test results from the specialist back and my Acetylcholine receptor's are normal.
Does anyone know if thats important ?
Also, is it normal for ME patients to have a regular test result outcome on this?
 

ixchelkali

Senior Member
Messages
1,107
Location
Long Beach, CA
I wonder if enough ME patients even get tested on this to know what "normal" is for them. I've wondered about an acetylcholine connection, so I'll be interested in the responses to your question.
 

merylg

Senior Member
Messages
841
Location
Sydney, NSW, Australia
Ive just had my first test results from the specialist back and my Acetylcholine receptor's are normal.
Does anyone know if thats important ?
Also, is it normal for ME patients to have a regular test result outcome on this?

Your doctor has probably tested you for Acetylcholine Receptor Antibody which is associated with Myaesthenia gravis.

http://www.nlm.nih.gov/medlineplus/ency/article/003576.htm

A lack of the antibody does not rule out Myaesthenia gravis.

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001731/
 

AndrewB

Senior Member
Messages
119
Location
England, UK
No, but i do have problems breathing, not actually with my lungs, its more that my whole chest is restricted. Im unable to inhale very deeply, and this worsens with the fatigue.
Now Myaesthenia gravis has been mentioned i understand, he wanted to rule it out as being the problem im having with moving my lungs.
It was an anti body test.
 

AndrewB

Senior Member
Messages
119
Location
England, UK
Your doctor has probably tested you for Acetylcholine Receptor Antibody which is associated with Myaesthenia gravis.

http://www.nlm.nih.gov/medlineplus/ency/article/003576.htm

A lack of the antibody does not rule out Myaesthenia gravis.

http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001731/

Merylg, you mention that just because a blood test doesnt reveal the antibodies for myasthenia gravis, that it doesnt
rule it out. In those cases is that when a scan is used to see if there's a tumor ?