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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Chase Community Giving Contest for Small Non-profits-Nov 8 to 22-$3M in Prize Money

Dolphin

Senior Member
Messages
17,567
Enterovirus Foundation are charging. :Retro smile:
85 votes since last leaderboard (less than 6 hours).
 

Dolphin

Senior Member
Messages
17,567
ROCKY MOUNTAIN CFS/ME AND FM ASSOCIATION are charging - 74 votes in last 6 hours.

Others are doing ok (votes in 20s)
 

Aileen

Senior Member
Messages
615
Location
Canada
It's great that these 2 are making headway, but why aren't these people voting for the other leading M.E. charities too? :confused:
 

Dolphin

Senior Member
Messages
17,567
It's great that these 2 are making headway, but why aren't these people voting for the other leading M.E. charities too? :confused:
Yes, it would be interesting to see if there are charity-specific appeals going around or what is happening. But generally I think the charities have been fairly supportive of each other.
 

Tuha

Senior Member
Messages
638
Yes, it would be interesting to see if there are charity-specific appeals going around or what is happening. But generally I think the charities have been fairly supportive of each other.

I think enterovirus fondation was in a non- ME/cfs coalition. I checked some voters and they voted for the same organisations and we got lucky and enterovirus fondation was also there :)
 

Dolphin

Senior Member
Messages
17,567
I think enterovirus fondation was in a non- ME/cfs coalition. I checked some voters and they voted for the same organisations and we got lucky and enterovirus fondation was also there :)
Thanks. I would be interested in info on the coalition/what other groups were also voting. Not important of course. PM me if you prefer.
 

Tuha

Senior Member
Messages
638
Thanks. I would be interested in info on the coalition/what other groups were also voting. Not important of course. PM me if you prefer.

I dont remember anymore. It was 2-3 days ago when I saw it and I think you can see only the last 7 voters for which organisations voted. I only remember that there was that organisation "United Sikhs" which is on the second place and there were also some animals and health organisations and but I dont remember which ones. I will check it now sometimes and if I will see this coalition I will write you
 

Dolphin

Senior Member
Messages
17,567
I dont remember anymore. It was 2-3 days ago when I saw it and I think you can see only the last 7 voters for which organisations voted. I only remember that there was that organisation "United Sikhs" which is on the second place and there were also some animals and health organisations and but I dont remember which ones. I will check it now sometimes and if I will see this coalition I will write you
No problem. I was mainly trying to find out was there a particular segment of the population who would vote for them.
 

Dolphin

Senior Member
Messages
17,567
A better 12 hours :)

100TH =656 (+53) (so +39, +44, +53 ...)

#31 CFSKNOWLEDGECENTER INC Wellington, FL 1,063 (+24)

#34 INTERNATIONAL ASSOCIATION FOR CHRONIC FATIGUE SYNDROME/ME Chicago, IL 1,055 (+29)

#54 MASSACHUSETTS CFIDS/ME & FM ASSOCIATION Quincy, MA 862 (+29)

#62 ROCKY MOUNTAIN CFS/ME AND FM ASSOCIATION Denver, CO 786 (+19)

#63 WI MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME, ASSN, INC. Sun Prairie, WI 784 (+23)

#78 NJCFSA 727 (+19)

#86 ENTEROVIRUS FOUNDATION INC San Francisco, CA 705 (+27)

#160 CFOG, INC Kennesaw, GA 379 (+14)

#181 CONNECTICUT-CHRONIC FATIGUE AND IMMUNE DYSFNCTN SYNDROME ASSOC INC Milford, CT 311 (+9)

So none of the groups were close to getting the 53 votes that 100th position jumped by in those 12 hours! :(

53 votes isn't an impossible amount to get - I know groups have got that amount and more in previous time periods.
100th = 696 (+40)

All 7 charities in the top 100 got more than this. :Sign Good Job:

#30 INTERNATIONAL ASSOCIATION FOR CHRONIC FATIGUE SYNDROME/ME Chicago, IL 1,118 (+63)

#32 CFSKNOWLEDGECENTER INC Wellington, FL 1,115 (+52)

#51 MASSACHUSETTS CFIDS/ME & FM ASSOCIATION Quincy, MA 920 (+58)

#61 ROCKY MOUNTAIN CFS/ME AND FM ASSOCIATION Denver, CO 866 (+80)

#65 WI MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME, ASSN, INC. Sun Prairie, WI 831 (+47)

#81 ENTEROVIRUS FOUNDATION INC San Francisco, CA 782 (+77)

# 85 NJCFSA 770 (+43)

#162 CFOG, INC Kennesaw, GA 409 (+30)

#181 CONNECTICUT-CHRONIC FATIGUE AND IMMUNE DYSFNCTN SYNDROME ASSOC INC Milford, CT 332 (+21)
 

Dolphin

Senior Member
Messages
17,567
100th = 696 (+40)

All 7 charities in the top 100 got more than this. :Sign Good Job:

#30 INTERNATIONAL ASSOCIATION FOR CHRONIC FATIGUE SYNDROME/ME Chicago, IL 1,118 (+63)

#32 CFSKNOWLEDGECENTER INC Wellington, FL 1,115 (+52)

#51 MASSACHUSETTS CFIDS/ME & FM ASSOCIATION Quincy, MA 920 (+58)

#61 ROCKY MOUNTAIN CFS/ME AND FM ASSOCIATION Denver, CO 866 (+80)

#65 WI MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME, ASSN, INC. Sun Prairie, WI 831 (+47)

#81 ENTEROVIRUS FOUNDATION INC San Francisco, CA 782 (+77)

# 85 NJCFSA 770 (+43)

#162 CFOG, INC Kennesaw, GA 409 (+30)

#181 CONNECTICUT-CHRONIC FATIGUE AND IMMUNE DYSFNCTN SYNDROME ASSOC INC Milford, CT 332 (+21)
100th position=757 (+61) - the biggest jump yet.
So recently the jumps have been: +39, +44, +53, +40, +61

In the one before this, the 7 charities got more than the number 100th went up; this time none of them got that number. :(

#32 INTERNATIONAL ASSOCIATION FOR CHRONIC FATIGUE SYNDROME/ME Chicago, IL 1,154 (+36)

#33 CFSKNOWLEDGECENTER INC Wellington, FL 1,144 (+26)

#52 MASSACHUSETTS CFIDS/ME & FM ASSOCIATION Quincy, MA 964 (+44)

#66 ROCKY MOUNTAIN CFS/ME AND FM ASSOCIATION Denver, CO 893 (+27)

#67 WI MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME, ASSN, INC. Sun Prairie, WI 864 (+33)

#81 ENTEROVIRUS FOUNDATION INC San Francisco, CA 815 (+32)

#93 NJCFSA Florham Park, NJ 796 (+26)

#164 CFOG, INC Kennesaw, GA 434 (+25)

#181 CONNECTICUT-CHRONIC FATIGUE AND IMMUNE DYSFNCTN SYNDROME ASSOC INC Milford, CT 348 (+16)
 

Dolphin

Senior Member
Messages
17,567
Anyone looking at voting alliances

Firstly, I think we should ignore any ME/CFS groups outside the top 7 - they have not been keeping up at all.

The other 3 votes, if people have them, could be used for voting alliances - I only have 1 left as I wanted to encourage 8th and 9th and also I needed to vote for them to see what their votes were.

There are probably other groups who would help also. If no formal voting alliance is made, an informal one can be done by voting for them and then asking for a vote. However, that means voting for another group so it's not the ideal system unless the other group is likely to give the ME/CFS group a plug.

Unfortunately, it may be better to keep the NJCFSA out of any voting any alliance as they look like they won't make it. It's all a bit complicated given how many groups there are. It might be easiest if state groups pair off with another group from that state.
 
Messages
31
Location
Western PA
I also think that we will have big problems to keep our organisations in the top 100. I think its up to the patients who already voted to ask their friends and family because other patients simply dont react and are not motivated to do it. I dont understand it. If I remember correctly WPI got 10 000 votes in the last Chase contest. we did the same campaign, it was posted everywhere.....no wonder that after 30 years we are nowhere with this kind of patients support.

Just wanted to chime in here on this factor. I went hard on both the last Chase contest and the Vivint contest, and rounded up a sizable number of votes in each one by contacting all of my facebook friends personally. I was responsible for several hundred votes alone in Chase. But having done that twice within the last six months or so, I'm reluctant to do it again so soon, especially given the cheating that went on in Chase last time. I've asked a favor of these people twice, and I'm loath to offend them by being That Person who only contacts them when I need their votes. So I've been sharing it on facebook, but not messaging my mere acquaintances.
 

Aileen

Senior Member
Messages
615
Location
Canada
I dont remember anymore. It was 2-3 days ago when I saw it and I think you can see only the last 7 voters for which organisations voted. I only remember that there was that organisation "United Sikhs" which is on the second place and there were also some animals and health organisations and but I dont remember which ones. I will check it now sometimes and if I will see this coalition I will write you
Maybe we should be considering an alliance with them if they have votes left. They'll want to get to #1. I have one vote left.
 

Dolphin

Senior Member
Messages
17,567
Maybe we should be considering an alliance with them if they have votes left. They'll want to get to #1. I have one vote left.
A group with lots of voters is a good one to be in an alliance with - as a small percentage of them can still be significant.

Also none of our groups are in competition with groups in top 5 so again good on both sides.
 

Dolphin

Senior Member
Messages
17,567
From the UK lists I'm on, I don't think it is being promoted that much (except by me and a few others) - I'm not sure if many or even any of the UK national or local groups are supporting it.*

ME/CFS Australia (South Australia) and the Irish ME/CFS Association are two groups I know that have mentioned it in e-mails to members.

*There are lots of them so this is just a broad, sweeping statement that hasn't been really researched!
I should say that I have seen a lot of European names voting. I know the US is a melting pot or salad bowl with people of lots of different nationalities there but I think there has been a disproportionate amount of European names (incl. first names) perhaps particularly for the IACFS/ME (but not sure about that).
 

Dolphin

Senior Member
Messages
17,567
100th position=757 (+61) - the biggest jump yet.
So recently the jumps have been: +39, +44, +53, +40, +61

In the one before this, the 7 charities got more than the number 100th went up; this time none of them got that number. :(

#32 INTERNATIONAL ASSOCIATION FOR CHRONIC FATIGUE SYNDROME/ME Chicago, IL 1,154 (+36)

#33 CFSKNOWLEDGECENTER INC Wellington, FL 1,144 (+26)

#52 MASSACHUSETTS CFIDS/ME & FM ASSOCIATION Quincy, MA 964 (+44)

#66 ROCKY MOUNTAIN CFS/ME AND FM ASSOCIATION Denver, CO 893 (+27)

#67 WI MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME, ASSN, INC. Sun Prairie, WI 864 (+33)

#81 ENTEROVIRUS FOUNDATION INC San Francisco, CA 815 (+32)

#93 NJCFSA Florham Park, NJ 796 (+26)

#164 CFOG, INC Kennesaw, GA 434 (+25)

#181 CONNECTICUT-CHRONIC FATIGUE AND IMMUNE DYSFNCTN SYNDROME ASSOC INC Milford, CT 348 (+16)

The charge is starting. :-(

100TH =832 (+75)

None of the groups went up by that amount although the IACFS/ME were just one off it.

I would say outside the top two, the odds for the each of the others are less than 50/50 unless there is a good push.

#30 INTERNATIONAL ASSOCIATION FOR CHRONIC FATIGUE SYNDROME/ME Chicago, IL 1,228 (+74)

#35 CFSKNOWLEDGECENTER INC Wellington, FL 1,194 (+50)

#53 MASSACHUSETTS CFIDS/ME & FM ASSOCIATION Quincy, MA 1,016 (+52)

#69 ROCKY MOUNTAIN CFS/ME AND FM ASSOCIATION Denver, CO 931 (+38)

#72 WI MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME, ASSN, INC. Sun Prairie, WI 906 (+42)

#87 ENTEROVIRUS FOUNDATION INC San Francisco, CA 862 (+47)

#92 NJCFSA Florham Park, NJ 850 (+54)

#158 CFOG, INC Kennesaw, GA 481 (+47)

#181 CONNECTICUT-CHRONIC FATIGUE AND IMMUNE DYSFNCTN SYNDROME ASSOC INC Milford, CT 368 (+20)
 

Dolphin

Senior Member
Messages
17,567
The charge is starting. :-(

100TH =832 (+75)

None of the groups went up by that amount although the IACFS/ME were just one off it.

I would say outside the top two, the odds for the each of the others are less than 50/50 unless there is a good push.

#30 INTERNATIONAL ASSOCIATION FOR CHRONIC FATIGUE SYNDROME/ME Chicago, IL 1,228 (+74)

#35 CFSKNOWLEDGECENTER INC Wellington, FL 1,194 (+50)

#53 MASSACHUSETTS CFIDS/ME & FM ASSOCIATION Quincy, MA 1,016 (+52)

#69 ROCKY MOUNTAIN CFS/ME AND FM ASSOCIATION Denver, CO 931 (+38)

#72 WI MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME, ASSN, INC. Sun Prairie, WI 906 (+42)

#87 ENTEROVIRUS FOUNDATION INC San Francisco, CA 862 (+47)

#92 NJCFSA Florham Park, NJ 850 (+54)

#158 CFOG, INC Kennesaw, GA 481 (+47)

#181 CONNECTICUT-CHRONIC FATIGUE AND IMMUNE DYSFNCTN SYNDROME ASSOC INC Milford, CT 368 (+20)
Better news: 100th only went up by 50 votes: 100th = 882 (+50)

So recently the jumps have been: +39, +44, +53, +40, +61, +75, +50.

the IACFS/ME got 3 more than this, MASS CFIDS the same and the other 5 in the top 100 were all within 14 i.e. none lost major ground. :Retro smile:

So I'm feeling a lot more confident than yesterday for some of the groups. However, groups still need to keep getting votes as other contests suggest a big charge late in the contest.

#30 INTERNATIONAL ASSOCIATION FOR CHRONIC FATIGUE SYNDROME/ME Chicago, IL 1,281 (+53)

#34 CFSKNOWLEDGECENTER INC Wellington, FL 1,231 (+37)

#56 MASSACHUSETTS CFIDS/ME & FM ASSOCIATION Quincy, MA 1,066 (+50)

#72 ROCKY MOUNTAIN CFS/ME AND FM ASSOCIATION Denver, CO 967 (+36)

#76 WI MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME, ASSN, INC. Sun Prairie, WI 945 (+39)

#90 ENTEROVIRUS FOUNDATION INC San Francisco, CA 896 (+36)

#93 NJCFSA Florham Park, NJ 893 (+43)

#158 CFOG, INC Kennesaw, GA 512 (+31)

#180 CONNECTICUT-CHRONIC FATIGUE AND IMMUNE DYSFNCTN SYNDROME ASSOC INC Milford, CT 391 (+23)
 

helen41

Senior Member
Messages
567
Location
Sleepy Hollow Canada
I haven't done well with trying to negotiate unofficial alliances. I have contacted 3 groups, and only one was interested. Just to try it out, I got 20 friends to vote for them. So far I am not seeing a return. I am not impressed
 

Dolphin

Senior Member
Messages
17,567
It's going to be close ...

Better news: 100th only went up by 50 votes: 100th = 882 (+50)

So recently the jumps have been: +39, +44, +53, +40, +61, +75, +50.

the IACFS/ME got 3 more than this, MASS CFIDS the same and the other 5 in the top 100 were all within 14 i.e. none lost major ground. :Retro smile:

So I'm feeling a lot more confident than yesterday for some of the groups. However, groups still need to keep getting votes as other contests suggest a big charge late in the contest.

#30 INTERNATIONAL ASSOCIATION FOR CHRONIC FATIGUE SYNDROME/ME Chicago, IL 1,281 (+53)

#34 CFSKNOWLEDGECENTER INC Wellington, FL 1,231 (+37)

#56 MASSACHUSETTS CFIDS/ME & FM ASSOCIATION Quincy, MA 1,066 (+50)

#72 ROCKY MOUNTAIN CFS/ME AND FM ASSOCIATION Denver, CO 967 (+36)

#76 WI MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME, ASSN, INC. Sun Prairie, WI 945 (+39)

#90 ENTEROVIRUS FOUNDATION INC San Francisco, CA 896 (+36)

#93 NJCFSA Florham Park, NJ 893 (+43)

#158 CFOG, INC Kennesaw, GA 512 (+31)

#180 CONNECTICUT-CHRONIC FATIGUE AND IMMUNE DYSFNCTN SYNDROME ASSOC INC Milford, CT 391 (+23)

100th position is now 925 (+43)

That means in the last 4 days: +39, +44, +53, +40, +61, +75, +50, +43.

This is better than I thought - I thought there would have been more of a charge by now.

Quite a spread of changes in the following 7: range: +20 to +52

#30 INTERNATIONAL ASSOCIATION FOR CHRONIC FATIGUE SYNDROME/ME Chicago, IL 1,321 (+40)

#36 CFSKNOWLEDGECENTER INC Wellington, FL 1,264 (+33)

#57 MASSACHUSETTS CFIDS/ME & FM ASSOCIATION Quincy, MA 1,116 (+50)

#78 ROCKY MOUNTAIN CFS/ME AND FM ASSOCIATION Denver, CO 999 (+32)

#86 WI MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME, ASSN, INC. Sun Prairie, WI 975 (+20)

#92 ENTEROVIRUS FOUNDATION INC San Francisco, CA 948 (+52)

#99 NJCFSA Florham Park, NJ 931 (+38)

100th=925
------ cut-off point ------ cut-off point ---- cut-off point -----

#159 CFOG, INC Kennesaw, GA 541 (+29)

#179 CONNECTICUT-CHRONIC FATIGUE AND IMMUNE DYSFNCTN SYNDROME ASSOC INC Milford, CT 417 (+26)
 

helen41

Senior Member
Messages
567
Location
Sleepy Hollow Canada
If anyone EVER thought their votes didn't matter, they should look at these numbers. New Jersey is only 6 votes ahead of 100th place. Dropping 2 spots means the loss of $25,000. What a terrible shame that would be