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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Article: Two Weeks for $250,000 (or more) for CFS Support Groups with Chase Community Giving (Nov 8

A Good day for CFS Non-profits!CFS KnowledgeCenter is up from 32 all the way to 19th and are now on the first page of the leaderboard. Five of the groups moved up or stayed up... The IACFS/ME moved up 3 spaces, Wisconsin moved up 2, RMCFA stayed the same, New Jersey fell 7 and the Enterovirus Foundation fell 16 points and is just barely hanging on in the top 100 at 99.
  • CFSKnowledge Center - #19
  • AACFS (IACFS/ME) - #42
  • Wisconsin - #50
  • RMCFA - #53
  • New Jersey - #69
  • Mass CFIDS - #78
  • Enterovirus Foundation - #99
Congratulations to the CFSKnowledgeCenter for such a strong push! The IACFS/ME put out a call to its members to vote today and the CFIDS Association put a shout out on their Facebook page. I am holding some of my votes in reserve in order to use for alliances later in the contest.
 
Great job Anne...

Is there an easy way to send a message to all my Facebook Friends?

I have sent this FB message to all of my contacts. If you like, please copy it and do the same. We need to move the ME/CFS organisations up on the Leader Board.

Dear friends,

if you could spare a minute, please help us win up to $250,000 for ME/CFS advocacy by voting in the Chase Community Giving Facebook Contest. All it takes is a few simple clicks. Previous rounds of Chase Community Giving have resulted in over $100.000 for ME/CFS advocacy and research. Heres a new important chance for us!

Voting begins Nov 8th and ends Nov 22nd. Each person has 10 votes but is only allowed to vote once per non-profit. So: please use your votes on the 10 ME/CFS organisations listed below. Every organisation in the Top 100 will be awarded $25,000.

Heres how to do it:

1. Go to the Chase Community Giving's Facebook page and click Like (if you havent done so already in previous rounds) https://apps.facebook.com/chasecommunitygiving/

2. Use the links below and click on the "Vote" button for each organisation. When a Permission button appears, click Allow.

3. Spread this information to your friends and family and encourage everyone to vote.

Direct URLs for 10 participating ME/CFS organisations:

IACFSME, called AACFS in Chase Community Giving: https://apps.facebook.com/chasecomm...r-chronic-fatigue-syndrome-inc?src=vote_share

CFSKnowledgeCenter: https://apps.facebook.com/chasecomm.../943443312-cfsknowledgecenter-inc?src=twitter

Rocky Mountain CFS /ME and FM Association (Rocky Mountain CFS Association Inc. in Chase): https://apps.facebook.com/chasecomm...ountain-cfs-me-and-fm-association?src=twitter

Wisconsin CFS Association: https://apps.facebook.com/chasecommunitygiving/charities/391614649-wi-cfs-assn?src=twitter

New Jersey CFS Association: https://apps.facebook.com/chasecomm...-fatigue-syndrome-association-inc?src=twitter

CFIDS and Fibromyalgia Self Help Program: https://apps.facebook.com/chasecomm...nd-fibromyalgia-self-help-program?src=twitter

Connecticut CFIDS Foundation:
https://apps.facebook.com/chasecomm...mmune-dysfnctn-syndrome-assoc-inc?src=twitter

MASSACHUSETTS C F I D S ASSOCIATION INC: https://apps.facebook.com/chasecomm...husetts-c-f-i-d-s-association-inc?src=twitter

Chronic Fatigue Syndrome Fibromyalgia Org of Georgia: https://apps.facebook.com/chasecomm...e-fibromyalgia-org-of-georgia-inc?src=twitter

Enterovirus Foundation: https://apps.facebook.com/chasecomm...513934-enterovirus-foundation-inc?src=twitter

Thank you so much!
 
Dolphin said:
helen41 said:
The ME charities that have expressed interest and submitted the necessary info to Chase are listed here:

- American Association for Chronic Fatigue Syndrome, Inc. (=IACFS/ME) Chicago, IL http://bit.ly/s48mcK http://www.iacfsme.org/

- Rocky Mountain CFS/ME and FM Association Denver, CO http://bit.ly/s5fAJh http://www.rmcfa.org/index.html FB http://on.fb.me/uqyE5r

- Cfsknowledgecenter, Inc. Wellington, FL http://bit.ly/lkvWpU http://www.me-cfscommunity.com/ http://www.facebook.com/CFSKnowledgeCenter

- Wisconsin Chronic Fatigue Syndrome Association, Inc. Sun Prairie, W http://bit.ly/mlmr0c http://www.wicfs-me.org/

- New Jersey Chronic Fatigue Association, Inc. Florham Park, NJ http://bit.ly/tXpa46 http://www.njcfsa.org/ FB http://on.fb.me/sZfzJb

These two groups have expressed interest, but don't yet have their profiles up on the Chase site:

- Massachusetts CFIDS Association, Inc. Quincy, MA http://bit.ly/sJXeQ9 http://www.masscfids.org/

- Enterovirus Foundation, Inc. San Francisco, CA http://bit.ly/lzhRfi http://www.enterovirusfoundation.org/ FB http://www.facebook.com/EVForg
Three of my relatives and I have now voted for the top 6. We might vote for the 7th one later. I think it's useful to hold some votes for any potential alliances. I have two more relatives who have shown before they're willing to listen to me - but easiest to wait till I have 10 to suggest to them.
Couldn't restrain myself and have just voted for the Enterovirus Foundation - it's still hanging in there in 99th. It looks to me that these are the main ones in contention at the moment - and there's a big gap to anything below them. If the Enterovirus Foundation could tap into the polio vote (say), it might take off.

If the others are out of the running, they will likely have a chance again in a year or two. And hopefully some of the charities above won't be involved then as they'll have won (and hence be ineligible).
 
The 7 groups are still in the top 100. Assuming that none got in the top 5, that would be $175,000 ($25,000x7)! Well worthwhile putting in the effort to vote, and encouraging others to vote.

A mixed day for CFS, the CFSKnowledgeCenter stayed put at 19, the IACFS/ME (AACFS) moved up 2 places to 33, Wisconsin, Mass and RMCFA dropped down 2 places and Enterovirus Foundation dropped out of the top 100.

<ul><li>CFSKnowledge Center - #19</li>
<li>AACFS (IACFS/ME) - #33</li>
<li>Wisconsin - #52 </li>
<li>RMCFA - #55</li>
<li>New Jersey - #71</li>
<li>Mass CFIDS - #75</li>
</ul>
 
How to get 100K for all the groups? Dan Moricoli has a way and here it is. Send this email out to all your friends. (I'm going to do it).

Subject: A Friend in Need of a Few Minutes of Your Time

Would you please spare just two minutes to help me . . . and 28 million others like me?As you may recall, I have ME/CFS, a disease often called Chronic Fatigue Syndrome or myalgic encephalomyelitis. This terribly debilitating disease leaves its victims bedridden for days, weeks and even months at a time. There is no cure yet . . . only hope.The disease is more prevalent than breast cancer, multiple sclerosis, cerebral palsy and muscular dystrophy . . . combined. Women suffer its ravages far more than men (76% Vs 24%). Most of the afflicted have fibromyalgia as well.I have been afflicted with the disease for years. The impact on my life as well as the millions of others who share my disease has been devastating. You can learn more about ME/CFS in a 1 minute video by clicking on the photo below or going to http://vimeo.com/32012779.

I'm contacting you to ask that you take just a few minutes to help our ME/CFS organizations win a Chase bank contest. There's nothing to buy and no obligation.Right now, we have a great opportunity to raise a substantial sum of money to support the organizations who share a mission of service to those afflicted with ME/CFS through the Chase Community Giving contest as Chase is donating over $3million to the top vote getting charities in a Facebook contest.

Here is how you can help:

1. A Facebook page is required. If you dont have one, please sign up for one, it takes just a minute and you can easily delete it after the contest if you wish.
2. Sign into your Facebook Page and then go to the Chase Community Giving page and click the "Like" button at the top of the page.
3. Then, search for each of the organizations shown below, or simply click on the link following their names and click on the "Vote and Share" button.

American Association for Chronic Fatigue Syndrome, Inc. (=IACFS/ME) http://bit.ly/s48mcK
CFSKnowledgeCenter, Inc. http://bit.ly/lkvWpU
Massachusetts CFIDS Association, Inc. http://bit.ly/sJXeQ9
New Jersey Chronic Fatigue Association, Inc. http://bit.ly/tXpa46
Rocky Mountain CFS/ME and FM Association http://bit.ly/s5fAJh
Wisconsin Chronic Fatigue Syndrome Association, Inc. http://bit.ly/mlmr0c

Just one more thing, please forward this message to your family and friends and ask them to vote as well.
 
Good job, Cort and Phoenix Rising. I like a lot how you promote the contest with the article, email newsletter, the windows to the right of the forum. etc. I think this is the way to go. We can win a lot here, the money, the attention and it's good if we get used to working together on something like this. Between the different organisations and communities. Also, if we win, it shows the people affected we have to power to do something. Thanks to everybody who is helping with this effort.
 
Massachusetts CFIDS Association has completed their profile page (it doesn't show yet because there is a delay while Chase reviews it), and Enterovirus Foundation is working hard on theirs, so the ME (ME/CFS) Fundraising groups has added them to the list of groups that are actively engaged in the contest

American Association for Chronic Fatigue Syndrome, Inc. (=IACFS/ME) http://bit.ly/s48mcK
CFSKnowledgeCenter, Inc. http://bit.ly/lkvWpU
Massachusetts CFIDS Association, Inc. http://bit.ly/sJXeQ9
New Jersey Chronic Fatigue Association, Inc. http://bit.ly/tXpa46
Rocky Mountain CFS/ME and FM Association http://bit.ly/s5fAJh
Wisconsin Chronic Fatigue Syndrome Association, Inc. http://bit.ly/mlmr0c
Enterovirus Foundation, Inc. San Francisco, CA http://bit.ly/lzhRfi
 
There are currently 7 ME/CFS/CFIDS orgs in the top 100--in line to win $25,000 each, if we can keep them there, and links to their voting pages: - American Association for Chronic Fatigue Syndrome, Inc. (=IACFS/ME) http://bit.ly/s48mcK - Rocky Mountain CFS/ME and FM Association http://bit.ly/s5fAJh - Cfsknowledgecenter, Inc. Wellington, FL http://bit.ly/lkvWpU - Wisconsin Chronic Fatigue Syndrome Association, Inc. http://bit.ly/mlmr0c - New Jersey Chronic Fatigue Association, Inc. http://bit.ly/tXpa46 - Massachusetts CFIDS Association, Inc. http://bit.ly/sJXeQ9 - Enterovirus Foundation, Inc. San Francisco, CA http://bit.ly/lzhRfi Chronic Fatigue Syndrome Fibromyalgia Org of GA is now actively involved in the contest and seeking votes. http://bit.ly/jAPq2Z
 
Five Orgs Stay put - two others move up. - Everybody basically stayed put except for Mass CFIDS and New Jersey which zoomed up about 15 places! Congratulations Mass and New Jersey!
  • CFSKnowledge Center - #20
  • AACFS (IACFS/ME) - #34
  • Wisconsin - #53
  • RMCFA - #56
  • Mass CFIDS - #60
  • New Jersey - #64
  • Enterovirus Foundation - #100
 
Massachusetts CFIDS Association has completed their profile page (it doesn't show yet because there is a delay while Chase reviews it), and Enterovirus Foundation is working hard on theirs, so the ME (ME/CFS) Fundraising groups has added them to the list of groups that are actively engaged in the contest

American Association for Chronic Fatigue Syndrome, Inc. (=IACFS/ME) http://bit.ly/s48mcK
CFSKnowledgeCenter, Inc. http://bit.ly/lkvWpU
Massachusetts CFIDS Association, Inc. http://bit.ly/sJXeQ9
New Jersey Chronic Fatigue Association, Inc. http://bit.ly/tXpa46
Rocky Mountain CFS/ME and FM Association http://bit.ly/s5fAJh
Wisconsin Chronic Fatigue Syndrome Association, Inc. http://bit.ly/mlmr0c
Enterovirus Foundation, Inc. San Francisco, CA http://bit.ly/lzhRfi

Mass jumped up about 15 points overnight - whatever they did worked!

Ditto with New Jersey :)
 
We have an 8th group that has submitted info to Chase, Chronic Fatigue Syndrome Fibromyalgia Org of Georgia Inc.

American Association for Chronic Fatigue Syndrome, Inc. (=IACFS/ME) http://bit.ly/s48mcK
CFSKnowledgeCenter, Inc. http://bit.ly/lkvWpU
Massachusetts CFIDS Association, Inc. http://bit.ly/sJXeQ9
New Jersey Chronic Fatigue Association, Inc. http://bit.ly/tXpa46
Rocky Mountain CFS/ME and FM Association http://bit.ly/s5fAJh
Wisconsin Chronic Fatigue Syndrome Association, Inc. http://bit.ly/mlmr0c
Enterovirus Foundation, Inc. San Francisco, CA http://bit.ly/lzhRfi
Chronic Fatigue Syndrome Fibromyalgia Org of Georgia Inc. http://bit.ly/kdavB3

Exciting times!
 
Up and Down We go!

With just seven days left in the contest six groups are in the top 100 but more groups are losing ground than gaining. Whatever Mass CFIDS is doing the other groups should copy - they are up 28 points in 2 days!

CFSKnowledgeCenter dropped 2 points, the IACFS/ME shot up 3, Mass CFIDS shot up 13!, Wisconsin was down 5, New Jersey is down 8 and Rocky Mountain is down 9., Entervirus Foundation is down 5.


<ul><li>CFSKnowledge Center - #23</li>
<li>AACFS (IACFS/ME) - #31</li>
<li>Mass CFIDS - #47 </li>
<li>Wisconsin - #61</li>
<li>Rocky Mountain- #65</li>
<li>New Jersey CFA - #72</li>
<li>Enterovirus Foundation - #105</li></ul>