Daisymay
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Requires investigation of the Norwegian ME treatment
Professor and ME expert Ola Didrik Saugstad believes that many ME patients deserve compensation from the Norwegian health care system for what he characterizes as highly reprehensible treatment.
I have compared the treatment of ME sufferers with the mentally ill were the 50 - and 60-century when they were lobotomized. With that, I try to say that they have a very bad and very reprehensible treatment, says Professor Ola Didrik Saugstad to tv2.no.
The professor has the last 15 years involved in the ME case. He has a son with ME and have had to familiarize themselves with what ME / chronic fatigue syndrome. This is because he believes the Norwegian health care system mistakenly focused on ME as a mental illness.
Those who have argued that it was a psychosomatic disorder has had a major influence. And when Health and Social Affairs established a so-called "experts" was that dominated the psychosomatic-oriented professionals. I believe that Health and Social Affairs has a large share of the blame for the unfortunate attitudes that have developed this disease, says Saugstad to tv2.no.
Saugstad know well to study at Haukeland Hospital, where ME patients have been treated with cancer drug Rituximab. Since he has been in close contact with cancer doctors Fluge and Mella.
Wednesday was the study published and TV 2 could tell that the Norwegian ME breakthroughs to solve ME riddle .
Also read: About ME study that offers hope to millions of people
Hope to investigation
TV 2 has met ME sufferers "Gunnar" who was admitted to a psychiatric hospital and treated with antidepressants. Saugstad know of similar cases from England.
I would characterize this as a violation of these patients. A serious assault, says Saugstad to tv2.no.
He is confident attitude of ME will change and that we will look back in time we have been through with amazement.
I think NOK it is correct to say that we have developed a good NOK care for these, and I apologize.
I hope that many of these cases will be examined one day. I believe that many of these patients and their families deserve compensation from the Norwegian health care system, says Saugstad.
Rejected by the local hospital
Saugstad is a famous person in the ME community. Many people have approached him in a desperate attempt to get help.
I've traveled around to many of the sickest patients in Norway. It was a shock for me to see how sick these people are. I am a pediatrician and has worked with intensive care medicine for many years and have seen many sick patients over 30 years. This is one of the worst I've ever seen.
The professor tells of encounters with patients in the dark room in their homes. The only help many get is from family members.
See video: Touched ME patients could see hope for research breakthrough
I had a patient who was at home. Had it not been for the close relatives working in the health care system as she had not lived NOK today. I called the woman's local hospital and told him that I thought she probably would not survive. I told him that she was almost in a coma. The answer I got was that they did not believe this was a somatic (physical, editor.) Disease and that it therefore was not their responsibility.
This is not the only episode Saugstad had.
I have felt that local hospitals have not wanted to take responsibility for the sick patients. There is little interest in how to help these patients, says Saugstad.
Health Directorate takes self-criticism
Assistant Health Director in the Directorate of Health, Bjorn Guldvog is humble in the face of the new local research results:
Do you take self-criticism at the way these patients has been met by the health-Norway?
Yes, in a way we do it NOK. I think that we have too little has been able to meet people who have chronic fatigue in a good NOK way, and we are looking for good ways to do this, he says.
What will you say to those who for years has been met with disbelief by doctors and health care systems in Norway?
It is of course very unfortunate for the people concerned. We are working actively to ensure that those with ME be treated with respect in every individual case.
I think NOK it is correct to say that we have developed a good NOK care for these, and I apologize, says Guldvog
My ME sick children received no help
One of those who have come to know this body is Kjersti Krisner. She has three ME-ill children. In an interview on TV 2 News Channel Friday she tells how the family has been met by the health care system. And she is merciless in his criticism.
See the strong interview here:
(Article continues below)
Disappointed with the Health Directorate
In 2008 Professor Saugstad wrote a letter to the Health Directorate, where he took up the lack of services for the most severely ill ME patients.
I was allowed three patients to mention them specifically. This was very poor patients not receiving treatment in hospital. I am disappointed with the Health and Social Affairs. I never got any proper answer.
Read also: Elene (26) were cured of ME
According to Saugstad answer was that they generally would focus on the very sickest.
As far as I've seen, they have never done it, says Saugstad to tv2.no.
Rejects that ME is a psychiatric disorder
Until now, treatment of ME patients mainly consisted of cognitive behavioral therapy, graduated exercise and activity courses. Mastery Course is about learning to live with the disease.
Read also: American professor applaud Norwegian research results
Offer to ME patients have come from those who think that this is not a physical illness. When it comes to cognitive behavioral therapy, I was very against it. The same applies to graded exercise. There are studies that show that these patients are worse of it. I am opposed to these treatments, not only has been released, but pushed on patients. Elene Nverlid er pilotpasient nr 3 i gjennombruddsstudien utfrt av professor Olav Mella og overlege ystein Fluge ved kreftavdelingen p Haukeland sykehus. God morgen Norge Elene Nverlid pilot patient No. 3 in the breakthrough study conducted by Professor Olav Mella and Dr. ystein Fluge the cancer ward at Haukeland Hospital. Good morning Norway
Saugstad also criticizes those who provide and promote this form of treatment for ME patients.
There has been an international trend that these psychiatrists have had tremendous influence when it comes to attitudes to ME, and it has spread to Norway. Many of them said anything about cognitive behavioral therapy and graded exercise, has never met some of the sickest ME patients. In my opinion it is entirely basalt within medication that you see and examine patients before they make diagnoses and prescribe treatment. Anything else is a violation of basic medical ethics.
Comatose patients
The very sickest I've seen falling between all chairs in the Norwegian health care system. The reason is that they are not going to the doctor.
On their visit to ME patients he has met people who have been out of his room for several years.
Some of the worst lies in an almost comatose state. For me, it almost looked like they have an inflammation of the central nervous system. As you only see in very sick patients who are hospitalized.
Roses cancer doctors
Saugstad has been in touch with Fly and Mella from the beginning of the study and are very positive about their work.
Read also: Will find the world's first ME-test
The professor hopes that the Norwegian study will lead to an improvement in the treatment of ME patients.
The most important thing this study will bring with it an opportunity for treatment that is effective. The second is that the study clearly indicate that ME is a physical illness and that it affects the immune system. So it goes in the direction of being an autoimmune disease, says Saugstad to tv2.no.
In the long run, this could mean that doctors will find a clear cause-and-a test that can show whether you have CFS or not.
English version: Norwegian research breakthrough Can Solve CFS mystery
Requires investigation of the Norwegian ME treatment
Professor and ME expert Ola Didrik Saugstad believes that many ME patients deserve compensation from the Norwegian health care system for what he characterizes as highly reprehensible treatment.
I have compared the treatment of ME sufferers with the mentally ill were the 50 - and 60-century when they were lobotomized. With that, I try to say that they have a very bad and very reprehensible treatment, says Professor Ola Didrik Saugstad to tv2.no.
The professor has the last 15 years involved in the ME case. He has a son with ME and have had to familiarize themselves with what ME / chronic fatigue syndrome. This is because he believes the Norwegian health care system mistakenly focused on ME as a mental illness.
Those who have argued that it was a psychosomatic disorder has had a major influence. And when Health and Social Affairs established a so-called "experts" was that dominated the psychosomatic-oriented professionals. I believe that Health and Social Affairs has a large share of the blame for the unfortunate attitudes that have developed this disease, says Saugstad to tv2.no.
Saugstad know well to study at Haukeland Hospital, where ME patients have been treated with cancer drug Rituximab. Since he has been in close contact with cancer doctors Fluge and Mella.
Wednesday was the study published and TV 2 could tell that the Norwegian ME breakthroughs to solve ME riddle .
Also read: About ME study that offers hope to millions of people
Hope to investigation
TV 2 has met ME sufferers "Gunnar" who was admitted to a psychiatric hospital and treated with antidepressants. Saugstad know of similar cases from England.
I would characterize this as a violation of these patients. A serious assault, says Saugstad to tv2.no.
He is confident attitude of ME will change and that we will look back in time we have been through with amazement.
I think NOK it is correct to say that we have developed a good NOK care for these, and I apologize.
I hope that many of these cases will be examined one day. I believe that many of these patients and their families deserve compensation from the Norwegian health care system, says Saugstad.
Rejected by the local hospital
Saugstad is a famous person in the ME community. Many people have approached him in a desperate attempt to get help.
I've traveled around to many of the sickest patients in Norway. It was a shock for me to see how sick these people are. I am a pediatrician and has worked with intensive care medicine for many years and have seen many sick patients over 30 years. This is one of the worst I've ever seen.
The professor tells of encounters with patients in the dark room in their homes. The only help many get is from family members.
See video: Touched ME patients could see hope for research breakthrough
I had a patient who was at home. Had it not been for the close relatives working in the health care system as she had not lived NOK today. I called the woman's local hospital and told him that I thought she probably would not survive. I told him that she was almost in a coma. The answer I got was that they did not believe this was a somatic (physical, editor.) Disease and that it therefore was not their responsibility.
This is not the only episode Saugstad had.
I have felt that local hospitals have not wanted to take responsibility for the sick patients. There is little interest in how to help these patients, says Saugstad.
Health Directorate takes self-criticism
Assistant Health Director in the Directorate of Health, Bjorn Guldvog is humble in the face of the new local research results:
Do you take self-criticism at the way these patients has been met by the health-Norway?
Yes, in a way we do it NOK. I think that we have too little has been able to meet people who have chronic fatigue in a good NOK way, and we are looking for good ways to do this, he says.
What will you say to those who for years has been met with disbelief by doctors and health care systems in Norway?
It is of course very unfortunate for the people concerned. We are working actively to ensure that those with ME be treated with respect in every individual case.
I think NOK it is correct to say that we have developed a good NOK care for these, and I apologize, says Guldvog
My ME sick children received no help
One of those who have come to know this body is Kjersti Krisner. She has three ME-ill children. In an interview on TV 2 News Channel Friday she tells how the family has been met by the health care system. And she is merciless in his criticism.
See the strong interview here:
(Article continues below)
Disappointed with the Health Directorate
In 2008 Professor Saugstad wrote a letter to the Health Directorate, where he took up the lack of services for the most severely ill ME patients.
I was allowed three patients to mention them specifically. This was very poor patients not receiving treatment in hospital. I am disappointed with the Health and Social Affairs. I never got any proper answer.
Read also: Elene (26) were cured of ME
According to Saugstad answer was that they generally would focus on the very sickest.
As far as I've seen, they have never done it, says Saugstad to tv2.no.
Rejects that ME is a psychiatric disorder
Until now, treatment of ME patients mainly consisted of cognitive behavioral therapy, graduated exercise and activity courses. Mastery Course is about learning to live with the disease.
Read also: American professor applaud Norwegian research results
Offer to ME patients have come from those who think that this is not a physical illness. When it comes to cognitive behavioral therapy, I was very against it. The same applies to graded exercise. There are studies that show that these patients are worse of it. I am opposed to these treatments, not only has been released, but pushed on patients. Elene Nverlid er pilotpasient nr 3 i gjennombruddsstudien utfrt av professor Olav Mella og overlege ystein Fluge ved kreftavdelingen p Haukeland sykehus. God morgen Norge Elene Nverlid pilot patient No. 3 in the breakthrough study conducted by Professor Olav Mella and Dr. ystein Fluge the cancer ward at Haukeland Hospital. Good morning Norway
Saugstad also criticizes those who provide and promote this form of treatment for ME patients.
There has been an international trend that these psychiatrists have had tremendous influence when it comes to attitudes to ME, and it has spread to Norway. Many of them said anything about cognitive behavioral therapy and graded exercise, has never met some of the sickest ME patients. In my opinion it is entirely basalt within medication that you see and examine patients before they make diagnoses and prescribe treatment. Anything else is a violation of basic medical ethics.
Comatose patients
The very sickest I've seen falling between all chairs in the Norwegian health care system. The reason is that they are not going to the doctor.
On their visit to ME patients he has met people who have been out of his room for several years.
Some of the worst lies in an almost comatose state. For me, it almost looked like they have an inflammation of the central nervous system. As you only see in very sick patients who are hospitalized.
Roses cancer doctors
Saugstad has been in touch with Fly and Mella from the beginning of the study and are very positive about their work.
Read also: Will find the world's first ME-test
The professor hopes that the Norwegian study will lead to an improvement in the treatment of ME patients.
The most important thing this study will bring with it an opportunity for treatment that is effective. The second is that the study clearly indicate that ME is a physical illness and that it affects the immune system. So it goes in the direction of being an autoimmune disease, says Saugstad to tv2.no.
In the long run, this could mean that doctors will find a clear cause-and-a test that can show whether you have CFS or not.
English version: Norwegian research breakthrough Can Solve CFS mystery
