I have mostly avoided the treatment section of the forums. I find I'm really overwhelmed by all the many things people have tried and are trying and the endless types of treatments to try. There is the financial aspect of trying lots of treatments and medicines and supplements. There is the energy element, where my energy is so limited I don't know if it's a good idea to try a bunch of things, that simply by exerting the energy to learn about and try them I may make myself even worse. When I go out for anything including doctors and labs my post exertional sickness gets very bad and lasts forever. I'm not at the phase now where even a few days rest will help. I just don't seem to really get better lately at all.
Right now I'm housebound aside from my husband driving me to medical appointments that I keep extremely extremely spaced out from each other. I haven't even finished doing all the lab tests I need to do. Part of me feels, well, there are no cures, no treatments that really seem to be a proven relief, and each time I go out of the house I worsen. Also a lot of times when I try a medicine or supplement it seems to set even the small equilibirum I had totally off balance and makes things worse than better and I can't even get back to how I was before. I thought maybe I could stay home and rest for a while and then improve a bit and then pursue some more medical stuff. But I haven't gotten any better!
How do others balance the need for rest and not spending too much and not getting into a flareup/relapse with trying different things? I don't want to chase after every treatment out there and find I'm no better, or even worse off for it, but I guess doing nothing but trying to rest isn't helping either. I have tried to follow some of the tips from Bruce Campbell but I'm just not seeing any improvement. I think I've worsened a lot the past few months even though I keep resting and not doing exertion.
Right now I'm housebound aside from my husband driving me to medical appointments that I keep extremely extremely spaced out from each other. I haven't even finished doing all the lab tests I need to do. Part of me feels, well, there are no cures, no treatments that really seem to be a proven relief, and each time I go out of the house I worsen. Also a lot of times when I try a medicine or supplement it seems to set even the small equilibirum I had totally off balance and makes things worse than better and I can't even get back to how I was before. I thought maybe I could stay home and rest for a while and then improve a bit and then pursue some more medical stuff. But I haven't gotten any better!
How do others balance the need for rest and not spending too much and not getting into a flareup/relapse with trying different things? I don't want to chase after every treatment out there and find I'm no better, or even worse off for it, but I guess doing nothing but trying to rest isn't helping either. I have tried to follow some of the tips from Bruce Campbell but I'm just not seeing any improvement. I think I've worsened a lot the past few months even though I keep resting and not doing exertion.