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PACE Trial data - Freedom of Information request (MRC)

Esther12

Senior Member
Messages
13,774
I like that 'what do they know' site, and have seen some interesting things on there before.

They complained about too many FoI requests coming in for PACE, but it looks like this guy does it for lots of things. A lot of interesting DWP stuff on there. I wonder how he'll get on here.
 

Angela Kennedy

Senior Member
Messages
1,026
Location
Essex, UK
I like that 'what do they know' site, and have seen some interesting things on there before.

They complained about too many FoI requests coming in for PACE, but it looks like this guy does it for lots of things. A lot of interesting DWP stuff on there. I wonder how he'll get on here.

Hi Esther,

would you have a quote for the complaint about "too many FoI requests coming in for PACE" at all? It'd be useful for me if you do. Thanking you kindly :)
 

Esther12

Senior Member
Messages
13,774
Errr....

was it from that Australian radio interview? With the Lancet editor? I can't think where else it would have been, but I'm not sure if that's right. Sorry not to be of more use Angela.

Ignore that, it was the ABC radio:

"And indeed the study costs $4 million pounds to undertake but the allegations and the freedom of information requests and the legal fees that have been wrapped up over the years because of these vexatious claims has added another 750,000 pounds of taxpayers' money to the conduct of this study."

http://forums.phoenixrising.me/show...ents-for-CFS-PACE-trial/page2&highlight=radio
 

Angela Kennedy

Senior Member
Messages
1,026
Location
Essex, UK
Errr....

was it from that Australian radio interview? With the Lancet editor? I can't think where else it would have been, but I'm not sure if that's right. Sorry not to be of more use Angela.

Ignore that, it was the ABC radio:

"And indeed the study costs $4 million pounds to undertake but the allegations and the freedom of information requests and the legal fees that have been wrapped up over the years because of these vexatious claims has added another 750,000 pounds of taxpayers' money to the conduct of this study."

http://forums.phoenixrising.me/show...ents-for-CFS-PACE-trial/page2&highlight=radio

Thanks for this Esther.
 

Dolphin

Senior Member
Messages
17,567
I have just been made aware of the following ongoing Freedom of Information request regarding the PACE Trial data: http://www.whatdotheyknow.com/request/request_for_raw_data_from_the_pa#outgoing-127757
The MRC have left a reply saying that they don't have the data and that the applicant should apply to Queen Mary, University of London.
http://www.whatdotheyknow.com/request/request_for_raw_data_from_the_pa

The applicant has thus made a fresh FOI request to Queen Mary:
http://www.whatdotheyknow.com/request/request_for_raw_data_from_the_pa_2
 

Dolphin

Senior Member
Messages
17,567
The MRC have left a reply saying that they don't have the data and that the applicant should apply to Queen Mary, University of London.
http://www.whatdotheyknow.com/request/request_for_raw_data_from_the_pa

The applicant has thus made a fresh FOI request to Queen Mary:
http://www.whatdotheyknow.com/request/request_for_raw_data_from_the_pa_2
Update: The applicant had no luck with the FOI request to Queen Mary.

ETA: Mr. Courtney has been in touch to say that he's following this thread and is looking for any advice or information have about FOI requests e.g. how might he appeal.
 

Dolphin

Senior Member
Messages
17,567
Mr Courtney has mentioned this FOI request in a BMJ rapid response today. It is one of four here: http://www.bmj.com/content/347/bmj.f5731?tab=responses

(i) Talking and exercise are unlikely to rectify mitochondrial dysfunction in CFS​
Ellen CG Grant, Physician and medical gynaecologist​
Retired, Kingston-upon-Thames, KT2 7JU, UK​
30 September 2013​
(ii) Re: PACE trial authors' response to Tom Kindlon​
Peter D White, Professor of Psychological Medicine​
T Chalder, M Sharpe, T Johnson, K Goldsmith
Barts and the London Medical School, St Bartholomew's Hospital, London EC1A 7BE​
1 October 2013​
(iii) Re: People want to learn as much as possible from the PACE trial for chronic fatigue syndrome​
Robert Courtney, N/A​
NA, London​
3 October 2013​
(iv) Response to White et al.​
Tom Kindlon, Assistant Chairperson​
Irish ME/CFS Association, PO Box 3075, Dublin 2, Ireland​
3 October 2013​