Hi
I've recently started seeing Dr Myhill, and am trying to make sense of all the results I have had back (so far I've had back thyroid - which showed low T4, and mitochondrial, which showed mito failure and gave a score of 0.32 - meaning moderate to severe).
One of the things that surpised me though was my CoQ10 result. Dr Myhill wrote levels were: "extremely low at just 0.12umol/L (0.55-2.00) - indeed from all the results I have seen I think this is a record low".
Why would my CoQ10 be so low? Has anyone else had a CoQ10 score like this?
She also wrote that: "This may well be implicated in the heart rate variability".
I have had heart issues throughout my illness - a 24 hr ECG showed my heart rate varies from as low 55 bpm, to as high as 143 bpm in a day (with little stress or activity to explain such variation). I also get frequent palpitations, and a sort of chest discomfort. Often my racing heart is also accompanied by breathing problems (either breathing too little or too much).
Since I've heard Co-Q10 is also linked to heart issues, could low levels help explain such problems? Could it also maybe explain my wired/agitated problems? As I usually get discomfort in my chest when I'm wired/agitated.
Also, she has written to my NHS doctor recommending that my doctor prescribes CoQ10 in the form of 'ubidecarenone' at a dosage of 400mg (split up into 200mg and 100mg dosages three times a day). Has anyone else tried this form of CoQ10? Does the form it is taken matter much? And should I begin on a small dosage and build up? And should I take CoQ10 on it's own or with other supplements? Dr M has recommended other supplements too but I'm only taking a few so far.
Sorry about all the questions! I still struggle to understand all this.
xx
I've recently started seeing Dr Myhill, and am trying to make sense of all the results I have had back (so far I've had back thyroid - which showed low T4, and mitochondrial, which showed mito failure and gave a score of 0.32 - meaning moderate to severe).
One of the things that surpised me though was my CoQ10 result. Dr Myhill wrote levels were: "extremely low at just 0.12umol/L (0.55-2.00) - indeed from all the results I have seen I think this is a record low".
Why would my CoQ10 be so low? Has anyone else had a CoQ10 score like this?
She also wrote that: "This may well be implicated in the heart rate variability".
I have had heart issues throughout my illness - a 24 hr ECG showed my heart rate varies from as low 55 bpm, to as high as 143 bpm in a day (with little stress or activity to explain such variation). I also get frequent palpitations, and a sort of chest discomfort. Often my racing heart is also accompanied by breathing problems (either breathing too little or too much).
Since I've heard Co-Q10 is also linked to heart issues, could low levels help explain such problems? Could it also maybe explain my wired/agitated problems? As I usually get discomfort in my chest when I'm wired/agitated.
Also, she has written to my NHS doctor recommending that my doctor prescribes CoQ10 in the form of 'ubidecarenone' at a dosage of 400mg (split up into 200mg and 100mg dosages three times a day). Has anyone else tried this form of CoQ10? Does the form it is taken matter much? And should I begin on a small dosage and build up? And should I take CoQ10 on it's own or with other supplements? Dr M has recommended other supplements too but I'm only taking a few so far.
Sorry about all the questions! I still struggle to understand all this.
xx