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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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My IL-8 has been as high as 8000. Right now I hovering around 860.
to sushi
my IL-8 is 438!!!!1
Corinne,
Thank you for posting your excellent Chronicles, having all those tests, and asking "all" of those questions!
You mentioned having a blood volume test, do you have low blood volume hence the IV saline and Procrit? Did you have increased pressure on your spinal tap by any chance?
So glad you're improving, it's wonderful!
I had the blood volume test and it was low.
And yes, DrP said my spinal pressure was about 185 or something like that.