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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Koan & DB: good advice--I find it hardddddddd to follow!!!! DB I was very teary yesterday and I tried to figure out why and I realized that my "belief" about an HIV-like retrovirus is very negative and fixed. It's integrated into every cell? It requires AIDS drugs? I have to step back and say as meaningful as the findings are, remember the info I know about homeopathy (including Montaigner's recent research) and remember there are other pathways to knowing and healing.
To various & sundry:
Koan & DB: good advice--I find it hardddddddd to follow!!!! DB I was very teary yesterday and I tried to figure out why and I realized that my "belief" about an HIV-like retrovirus is very negative and fixed. It's integrated into every cell? It requires AIDS drugs? I have to step back and say as meaningful as the findings are, remember the info I know about homeopathy (including Montaigner's recent research) and remember there are other pathways to knowing and healing.
Re: transmission. Interesting about hanta virus. Remember also I'm pretty sure monkey kidneys were used as a medium to grow polio vaccine and transmitted SV-40 (a virus). I still think it's modern vaccination programs, laboratory research, and/or bioweapons programs that are likely responsible for the epidemics of HIV, XAND and lyme.
Hi Summer
I've been trying to keep up with what's known about xmrv but haven't seen this. Could you tell me (or, if, as I would ask myself, do you remember) where you found this info? I find it very interesting.
I guess it is safe to admit I agree with you 100%. And let's not forget about Feline Leukemia, which is a retroviral illness that cropped up suddenly in cats all over the world 25 years ago.
Just things that have made me go hmm.
I have dug deep into all this for years, but I have kept it mostly to myself.
I guess it is safe to admit I agree with you 100%. And let's not forget about Feline Leukemia, which is a retroviral illness that cropped up suddenly in cats all over the world 25 years ago.
Just things that have made me go hmm.
I have dug deep into all this for years, but I have kept it mostly to myself.
In some wonky way I see a corollary of this, in a positive way, of how freddd and richk are interacting - not holding onto any idea because they want to be right, but genuinely open to sharing info/ideas - I find it inspiring.
Did Feline Leukemia just crop up, or is it just that they started testing for it? We have an FIV-positive stray that we keep indoors. My vet said he suspects most strays have it and have always had it, but only now do they test for it. Could it be the same with Feline Leukemia?
And of course, waiting to be answered, is whether XMRV is a genuinely new virus, or whether it has been with us for generations.
Far too many questions for a person like me, always impatient for answers.
Having had cats (wild and tamed), all outdoor, for 35 years (until 1985), I never saw anything like Feline Leukemia in a cat, and I lived in the country and between all my family and neighbors we had scads of cats
The XMRV specific forum is now up.
This forum should really grow as we learn more about this virus, testing, treatment, etc.
I moved some of the threads with regard to XMRV testing and resources there, but left permanent redirects in this forum.
Aftermath, could you or one of the other Admins put a link to this thread in the XMRV Retrovirus Resource List Sticky (Cort's post)? At the moment, this thread may be the most comprehensive resource for XMRV news available anywhere.
Thanks,
Kim
The finding of antibody or active virus in 95% of CFS and 4% of controls is a result that argues for causality, in my opinion, especially with the associated RNAse-L corruption and NK functional impairment that might predict such an infection.
http://cheneyclinic.com/page/1
From Cheney on his website:
Does anyone know where Cheney is getting the 4% figure? Is he simply rounding up the 3.7% from the study? Because the 3.7% refers only to active virus. I have yet to see Mikovits say how many controls have antibodies--has anyone else? I do worry if it's a high number it could diminish the impact of the XMRV link to CFS.
I've seen news outlets use the 95% (I think one source used 98%, but I don't think that's right.)
I really, really hope Mikovits can publish more data soon.
Hi. Do you think the 'test' we are waiting for will be for the live virus, or the antibodies to it?
Would it matter which one we get done?
E.g. (I'm guessing here)....
XMRV Antibodies = Infected Healthy People who are asymptomatic.
XMRV Live Virus = ME CFS People (severe)?
XMRV Live + Antibodies = ME CFS People (Less severe)?
Thanks for any ideas, great forum by the way, a god send.