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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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heheh someone is excited...
Sickofcfs,
Here is the part of the leaked ORTHO press release from the Zagreb conference that is relevant:
http://www.mmdnewswire.com/xmrv-9040.html
I expect this statement, or any semblance of it, to be disappeared. Literal or not. As far as the data presented, I honestly do not know what to expect. But you may have bragging rights and I will officially eat my words if the data presented by the Lo/Alter paper meaningfully contradict the latest CDC XMRV "research" paper.
Without sounding like a killjoy, I would only note that this appears to be the second time this article has been "in press", and that the evil minions at the Centers for Demonic Control (of ME patients) would certainly relish the event of yet another last minute intervention by those at the highest levels of DHHS. Do you really want to invite a jinxing on the cosmic level here?
Maybe we should add "excessive heartrate response to publication of scientific papers about a retrovirus" to the list of symptoms.
-----------------------------------------The data in the Lombardi, et al. Science manuscript are extremely strong and likely true, despite the controversy.
The association with CFS [Chronic Fatigue Syndrome] is very strong, but causality not proved.
XMRV and related MLVs are in the donor supply with an early prevalence estimate of 3% - 7%.
We (FDA & NIH) have independently confirmed the Lombardi group findings.
Okay. Sounds entirely fair. :Retro smile: One gets bragging rights, one eats her/his words. If it's debateable (which seems unlikely) we take a vote in the forum as to whether the paper fails your criteria, okay?
I admit I am inviting cosmic level jinxing, but WTH.
I admit I am inviting cosmic level jinxing, but WTH.
You could release a load of balloons with the words 'CDC was wrong about CFS" on them.
You bring up an interesting question, Cloud. What do people consider needs to be true about this paper for it to be worthy of celebration? Does it need to reference WPI directly? Does it need to show a correlation between XMRV and ME/CFS? Does it need to find XMRV in a specific percentage of ME/CFS patients?
What do we think is the minimum condition which allows us to celebrate?