Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
I find Mr. Switzer's lecture most disturbing. More so than the snub of Dr. Mikovits even.
I was just told that a researcher from Spain was flying in
Great summary Cort!
I just hope the tables turn when Dr Alters paper comes out, It's time for a media frenzy!
Heya Cort or anybody, aren;t we kind of half-ass official already on XMRV. it's recognized in protrate cancer, and some articles are already referring about it as existing in CFS.(read one yesterday in here, can't remeber where) Isn't it just a formaility at this point to come out and release the Alter paper? sounds like many of the other papers and stuff have already recognixed XMRV in CFS. It's just a matter of how to dump it on the public?
This is a worrying development
CDC on Chronic Fatigue Syndrome, Looks like the Centers for Disease control have updated the Chronic Fatigue Syndrome Pages on the website, Updated July 21, 2010
"No diagnostic tests for infectious agents, such as Epstein-Barr virus, enteroviruses, retroviruses, human herpesvirus 6, Candida albicans, and Mycoplasma inco...gnita, are diagnostic for CFS and as such should not be used (except to identify an illness that would exclude a CFS diagnosis, such as mononucleosis). In addition, no immunologic tests, including cell profiling tests such as measurements of natural killer cell (NK) number or function, cytokine tests (e.g., interleukin-1, interleukin-6, or interferon), or cell marker tests (e.g., CD25 or CD16), have ever been shown to have value for diagnosing CFS. Other tests that must be regarded as experimental for making the diagnosis of CFS include the tilt table test for NMH, and imaging techniques such as MRI, PET-scan, or SPECT-scan. Reports of a pathway marker for CFS as well as a urine marker for CFS are undergoing further study; however, neither is considered useful for diagnosis at this time."
http://www.facebook.com/l.php?u=http://www.cdc.gov/cfs/general/diagnosis/testing.html&h=17562
http://www.forums.aboutmecfs.org/showthread.php?5195-Nancy-Klimas-May-2010-Biomarkers-in-Chronic-Fatigue-SyndromeNKCC and three methods of measuring DPPIV/C26 examined in this study had potential as biomarkers for CFS
This is a worrying development
CDC on Chronic Fatigue Syndrome, Looks like the Centers for Disease control have updated the Chronic Fatigue Syndrome Pages on the website, Updated July 21, 2010
"No diagnostic tests for infectious agents, such as Epstein-Barr virus, enteroviruses, retroviruses, human herpesvirus 6, Candida albicans, and Mycoplasma inco...gnita, are diagnostic for CFS and as such should not be used (except to identify an illness that would exclude a CFS diagnosis, such as mononucleosis). In addition, no immunologic tests, including cell profiling tests such as measurements of natural killer cell (NK) number or function, cytokine tests (e.g., interleukin-1, interleukin-6, or interferon), or cell marker tests (e.g., CD25 or CD16), have ever been shown to have value for diagnosing CFS. Other tests that must be regarded as experimental for making the diagnosis of CFS include the tilt table test for NMH, and imaging techniques such as MRI, PET-scan, or SPECT-scan. Reports of a pathway marker for CFS as well as a urine marker for CFS are undergoing further study; however, neither is considered useful for diagnosis at this time.
This is a worrying development
CDC on Chronic Fatigue Syndrome, Looks like the Centers for Disease control have updated the Chronic Fatigue Syndrome Pages on the website, Updated July 21, 2010
"No diagnostic tests for infectious agents, such as Epstein-Barr virus, enteroviruses, retroviruses, human herpesvirus 6, Candida albicans, and Mycoplasma inco...gnita, are diagnostic for CFS and as such should not be used (except to identify an illness that would exclude a CFS diagnosis, such as mononucleosis). In addition, no immunologic tests, including cell profiling tests such as measurements of natural killer cell (NK) number or function, cytokine tests (e.g., interleukin-1, interleukin-6, or interferon), or cell marker tests (e.g., CD25 or CD16), have ever been shown to have value for diagnosing CFS. Other tests that must be regarded as experimental for making the diagnosis of CFS include the tilt table test for NMH, and imaging techniques such as MRI, PET-scan, or SPECT-scan. Reports of a pathway marker for CFS as well as a urine marker for CFS are undergoing further study; however, neither is considered useful for diagnosis at this time."
http://www.facebook.com/l.php?u=http://www.cdc.gov/cfs/general/diagnosis/testing.html&h=17562
I guess it is Dr. Soriano saying he cannot find it in CFS patient?
ok, help me out folks. (sorry if this belongs in the other thread. I guess I have to post it twice.)
Doesn't Soc. Security recognize CFS as a diagnosis that can cause disability to the point of not being able to be "gainfully employed"?
OK, and doesn't Soc. Security require objective tests to show the person has the diagnosis? And this is true even for CFS?
So, then why does CDC say there is no objective biological test?
Am I mistaken?
Tina