Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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The really big storm! I don't know what to say to those of you who are scared droolless. (drool is a wonderful thing) Tina lays it out pretty darn nice. The fear that those who have hurt the CFS/ME community in the past could do it again is understandable but the now is so different from the then that I have no problem with hanging out in the glass is overflowing group.
Just the people involved in this like Dr. Coffin, Dr. Goff, the Dr.'s Ruscetti, Dr. Alter, Dr. Lo and that's just the cream!
My glass overflowing prediction (drum roll please) August 23rd release of the NIH and FDA papers with a follow up Press Release banning of CFS patients from donating blood, organs or tissue in September. And then my fellow foggy brain, awesome, cool wonderful crew it's going to be all CFS all the time. News channels, talk shows, documentary's, and print. You better have your stories ready cause everybody is going to want to know. (grins)
That's my prediction and I'm stickin' too it! Woof!
I'm hangin' with George on this (if he doesn't mind the virtual smell of my 5 cats).
(big grins) Sure, sure bring the cat's . . . I like cat's (drool, drool)
[Trying to herd cats out of the room]
A little kitty-'scetti anyone??
it's going to be all CFS all the time. News channels, talk shows, documentary's, and print. You better have your stories ready cause everybody is going to want to know. (grins)
Well, it could even be today. We are now in a holding position boys and girls.
Perhaps its time to just let XMRV go in terms of looking to a retroviral pathogen being connected to CFS.
what day does the journal publish again ?