Esther12
Senior Member
- Messages
- 13,774
I think we should keep the name, as a reminder of the history and the way patients were treated. If a causal link between CFS and XMRV is shown then the problems of the name will become irrelevent.
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Personally, I'd go for the traditional method of honouring the person who finally defined what it really is. My vote is for Mikovits Disease.
I'm not keen on acronyms. They're OK for the military and computer programmers, but... you know, this is an illness. We cannot make a list of all its symptoms to compose the title.
Mmmm...Not sure about this one, inevitably some will read it as Whip Me Disease (WMD?) Weapon of Mass Destruction? Certainly true in some respects!
I wish I could believe you're right. My father, and now my husband, have to remind me repeatedly, "Never underestimate the power of ignorant people in large numbers." Like it or not, if Fatigue is in the name, "tired" is in their minds. A vast majority of people won't even know (or care) about a causal link. And of course the detractors will certainly be playing the "Sure it's a retrovirus, but it's not that serious" tune.
Nope, I want rid of the f-word.
I vote for WTF. It effectively captures the whole illness experience.
As in:
"WTF do I feel so exhausted?"
"WTF is going on with my body?"
"WTF do you mean there's nothing wrong with me?"
"WTF? Graded WHAT Therapy?"
"WTF happened to my life?"
"WTF can't you just cut the nonsense and get on with the real research, already?"
EDIT:
I'll add any new WTF experiences to solidify the position that WTF Disease is the most descriptive name for our illness. You think it up, I'll add it.
wtf is this new weirdness... (thanks to JAH)
RAWATAD?
(ReevesandWessleyaretotalasses disease)
If XMRV is 100% confirmed it should be definetely called Whipemi's Disease for Whittemore, Peterson and Mikovits.
I like the name, but the acronym doesn't work. I refuse to say, "I have NEEDS."
Ummmm...... we were just having a little fun.....
I do agree, though, that we need to try to use ME/CFS rather than Chronic Fatigue Syndrome (or worse, Chronic Fatigue) until there's an official name change.
Until then, however, I insist on being allowed to play around with new names. :Retro tongue: We gotta get a laugh out of this now and then.