New Symptom: as I have angina pain (which is back) I am having kinda the same contraction pain in lungs. Is different and never felt it before, is like if I can't sustain the regular function of the lungs. I also have trachea pain, like somebody is sitting on my throat/upper chest. Breathing is a lot of work.
So I broke my normal routine because I have visitors at work, it requires to sit on regular chair all day (Instead of my office recliner) and I have to move and be upright a lot.
Day 1: I made it with a 16oz of redbull. At one point I was so tired that had to take break and go to lay down in my car in the cold. At the end of day, I was in so much pain, My neck felt like it was screwed to my head the wrong way, the pain was so bad I wanted to go to the hospital and get something strong (I did advil and my prescribed pain med). I went to bed at 7:30pm until 7 the next day. I woke up better on day 2 but still tired.
Day 2: I was a little better after all the sleep. I took the lunch break to lay in my car and rest as much as I could. When I got home all I could do was sit on couch, couldn't help my kid or do anything in the house. I have been having swallowing issues. I tried to drink juice and could not even swallow that. It comes and goes, is not a permanent thing, it is just so grouse to have to spit what you swallow. and I am scared because I never know when I can or cannot swallow so I am being very careful when I eat or drink. I think is OI related.
The regular stuff are a lot of effort again, I can't take showers in the mornings to go to work ( I can do it at night after some rest), I have to minimize the trips up the stairs again.
At night the Muscle pain (deep close to the bone) was so Intense I wanted to cry like a little girl. It is such a different pain like acid like or something. I really need to get rid of this one.
Day 3: I am tired and trying to make it through the day. I am wondering why I work and not try to just stay home and not feel this miserable. This feels like torture. I think only another CFSer can understand the word torture when all you are doing is try to sit upright and pretend to be there. At this point I can't think or reason, the pain is intense everywhere, Neck, muscles. I feel sad because I can't help in the house. I am just trying to make it to the end of the day so I can lay down.
Working with CFS is sooooo hard
Blog entry posted by lnester7, Jan 9, 2013.
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