I achieved a lot of accomplishments today. Big stuff, in my world. Little stuff, by normal people's standards. But I did it.
I did all that, and I'm still planning to Skype with friends this evening and reheat food for myself to eat.
- I went to the dentist for a bite adjustment after major dental work yesterday that was causing me pain.
- I returned some items at a local shop and purchased a pair of socks that actually fits me. I now own one pair of socks and one pair of shoes that fits me. PROGRESS!!!!
- I got an Access Pass, with the help of transport and someone else pushing my wheelchair. This means that due to my status as disabled, I can visit national parks free of charge. I've been wanting this for months, because I'm just barely on the cusp of being well enough to visit some national parks. Now there is no financial barrier to attempting to do so, and no pressure to stay longer or to use it while I have it to "get my money's worth".
- I called my insurance company and sorted out which doctors are in-network, which are out-of-network, which of my prescriptions are covered, co-pays, deductibles, and all that. 6+ months ago this was completely beyond my capacity, even on a good day with nothing else. Today, it was just another thing on the list - actually the second day of lengthy discussions with insurance. My representative is fantastic and we got nearly everything sorted.
- Called my Dr's office to see if he would write a fresh prescription without seeing me...
- Called my local pharmacy as the office directed me to, gave all the information to someone with an extremely thick accent, hopefully that goes through. Then my most important emergency medication won't be down to 5 more doses and expired, at that.
- Scheduled paratransit for a trip on Monday.
- Scheduled a counseling appointment for later this month.
- Showered, though without washing my hair (or shaving or anything...ha, shaving is a joke of an energy-waster!)
Granted, not all days are this good. Two weeks ago I couldn't manage to make a single phone call to paratransit within the timeframe provided, so I had to arrange another ride. Those days happen. Other days I can't heat up my own food. But these days happen too - days where I'm well enough to actually take care of things. And sure, it's just treading water. But I like this new sensation of [mostly] keeping myself afloat. Feels good.
And I have a feeling it's only going to get better from here.
Well enough to manage illness
Blog entry posted by Dainty, May 8, 2014.
About the Author
Dainty became ill as a teenager and spent 7 years mostly bedridden from ME/CFS, life-threatening MCS reactions, extreme food allergies/sensitivities, cognitive impairment, fibromyalgia, episodes of temporary paralysis and various unexplained emergencies. The past couple years she has experienced profound improvement from various treatment approaches. She's now tackling independence and continues to pursue healing full time.