It has been a few days since the last update, and boy, has it been weird!
My body seems to be really confused as to what is going on. There are periods where the brain is feeling completely aware and focused - then 5 minutes later, can barely remember what I'm doing. There are periods of zoning out and lack of attention span. Unfortunately, that needs to change if I plan on doing any driving...
The body is confused too. Feeling completely energized and fired up - then only having enough energy to do something for 1-2 minutes. Was feeling really good 2 days ago when I got into the shower to get ready for work and ended up breathing like I had run a marathon while washing my hair.
My insomnia seems to have gotten better, but only because of a need for increased sleep.
The biggest concern seems to be that everything changes so rapidly right now. A few months ago, I crashed while at work - that took about 5-6 hours. That seemed really fast at the time. Things seem to change from minute to minute right now. Very difficult to pin down what is going on.
Not sure how much longer I'm going to be able to work before going on short term disability... I have a very sedate job, but can barely do it right now and it is supposed to pick up some in the next week or two. One thing that has been determined - if the short term disability / time off occurs, I'll boost the dosage all of the way up to the final level. That way, there will only be one period of taking time off from the job. Can't afford to take time off if it can be helped.
Currently at 450mg in the mornings. Will be taking my sixth dose in about 2-3 hours when I get home. Whee!
Also, if anyone has any thoughts of something they would like me to keep track of, please let me know asap.
=== BY THE NUMBERS: DAY 5-6 ===
Weight: 261.6 lbs
Activity Level: 3-4, depending on the day
Current Dosing: 450mg daily in AM
Lab values of note: None
Valcyte: Five Doses Down
Blog entry posted by ArgyrosfeniX, Jan 18, 2012.
About the Author
Living with ME/CFS since the age of 16 (1989). Was persistent enough to get three Associates Degrees and get married through it all. Working hard to keep going for as long as I can before becoming bedridden. Current treatment plan is to use Valcyte for 2 years starting January 13th, 2012, then possibly switch to Valtrex for an indefinite period. "Here I am trying to live, or rather, I am trying to teach the death within me how to live." ~ Jean Cocteau