I am back on imunovir. I have had Extremly good days and Extremly bad days. I think I am much more fucntional but when I get PEM or I go down, I do with the same level of suffering I did before.
I was wondering why if everybody sees me doing better I feel not much progress, My conlcusion is because when I relapse or crash I am getting the same intensity of the balckslash of symptoms. So I am doing better in a sense, I just guess my expectations were that as I get better the symptoms would loose severity. I came to the conclusion that no matter what I am a relpsing remitting case, I cause my downs sometimes, soemtimes I get them no matter how much I rest and I am finding a pattern no matter what I do.
I am now at full dose on Famvir 2 pills a day. So far no much difference or sideeffects. I am strugling with numbness in brain but have no idea why is worse lately. I also found out that walking makes better my latic acid pain, so I need to choose between PEM and Muscle pain, If i walk just the right amount PEM might not be so bad. Unfortunately for the pain to go away I have to cross that line. There is no winning!!!
I am having terrible mood swings, Not sure why. Overall I am improving and
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Blog entry posted by lnester7, Apr 9, 2013.
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