1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!

Update

Blog entry posted by lnester7, Jan 3, 2013.

So there is hope for a life. I went to animal Kindom, FL, USA. Is a theme park, I rented a scooter (kind of a whole family adjustment) and I did OK from 9:30am - 2pm By the time we left the park I crashed for 3hours, but I was just tired, I didn't feel miserable or had other symptoms. I have been traveling so much and I am still going. Have another work trip planned by the end of the month but still going.

LDN: Has improve, I am more settle in the drug and not having as bad side effects. I think this one is a keeper. I need to increase dose soon, so will keep monitoring close.

OI: My OI is so much better, not sure what is doing the trick if the excercises or the current protocol but obviously I can do more now. Will try to start exercising because I have done so much in this trips I think I can give it a try again.

Other Symptoms: Pain in the neck Is bad but I can still live with it. Not sure I will do anything about it may mention it to my next GP visit. My breast keeps hurting on and off, I need to get that checked, will do an appointment ASAP. Other than that I feel less sick. I get more good times than bad now. I still have days where I wonder why keep pushing, it gets hard some days but then the worse passes and it becomes tolerable again. I think the progress is the one thing that keeps me going.

All other protocol stays the same, I restarted from fatigue to fantastic vit powder because it helps me so much. So will see if this gives me the last push I need.
Bonnie and merylg like this.
  1. Bonnie
    Good Luck! I'm new here. I got so excited just reading about someone feeling better, I had to comment.
    lnester7 likes this.