I had the TTT today. I went no food or drink after 12am. It was very simple, the bed was like a table. I lay there while they conected the heart and vital signal stuff. I also got hooked up to an IV. The Electrophysiologyst was in and out while I was upright. The first part of the test (20min) was uneventful. then they gave me hydroxy soemthing some drug under the tongue to provoke vasso dilation.
When I was up w the drug, After a few minutes I told the doctor I was feeling exactly What I feel like a crash that I needed to lay down please, he said but your vitals are normal and like in 5 seconds, nurse say "there she goes" next thing I know I was passing out, I just remember he saying "breath you are hypo ventilating" I was like dude "I am gonna just throw up on you if you don't put me down" but I couldn't even speak at that point and went unconscious.
He say I have OI but not POTs??? My HR went over 130bpm but BP was ok?!? I am confused about what POTs is then.
Update: Doing very good on florinef Up dose to .1mg today. I am not sleeping even with meds but got my period, sometimes I do that before I start, Will monitor it. All other symptoms well. Today little burning on head, but after the crash I guess is normal.
I have been off complete no lactose for 5 days now, had half a cup of hot cocoa and had IBS right after, so no more lactose for me.
Progress is in the air.
Tilt Table Test - OI (no POTs???)
Blog entry posted by lnester7, Aug 24, 2012.