Apparently you folks have hashed this out before here. I have my beliefs along with everyone else. I am speaking for myself, I do see a correlation and I certainly had chronic fatigue decades before AIDS. I do believe that having a lifetime of immune issues certainly made it that much easier to progress to AIDS. Statistically, I should not have AIDS but with most things in life, there are always exceptions to the rules.
Yes, but you live in New Zealand and most of our doctors have not caught up with you folks! Dr. Chenny is certainly ahead of most, but unfortunately, he only sees 1 patient a day when he is not doing research and he is very expensive, so I couldn't see him. But his and Dr. Titlebaum's (if that's spelled right) work is very important. We don't even call it ME, as most of you do. Most of our doctors, at least the one's I've seen, only run the standard complete blood count and prescribe pain medication to mask the symptoms. I'm having trouble making sense of your response. You completely ignored the comments above pointing out that CFIDS is not AIDS. Many diseases have overlapping symptoms; considering that CFIDS appears to center on the immune system as does AIDS one would expect there to be some common symptoms between them. Quite different things commonly have similarities. Water, gasoline and ethyl alcohol are all clear liquids, feel wet and make your skin feel cold as they evaporate. That does not mean they are the same substance.
Yes, but you live in New Zealand and most of our doctors have not caught up with you folks! Dr. Chenny is certainly ahead of most, but unfortunately, he only sees 1 patient a day when he is not doing research and he is very expensive, so I couldn't see him. But his and Dr. Titlebaum's (if that's spelled right) work is very important. We don't even call it ME, as most of you do. Most of our doctors, at least the one's I've seen, only run the standard complete blood count and prescribe pain medication to mask the symptoms.
Noreen, You are behind with the news here. ME was called "poor mans AIDS" in New Zealand during the Tapanui Flu out break there. In the USA Dr Cheney reported his patients who had low CD4 cells to the CDC. Many people with ME and CFS were classified as "non-HIV" AIDS. Many of us are still alive. The similarity between AIDS and ME was widely spoken about and reported by patients and their doctors during this time. It's not a closely guarded secret. Why not read Osler's Web (the book) and take a look at the history before posting again? Then you will know what is old news and what happened. There's no point reinventing the wheel and rehashing as if it was new. I lived through all of this and remember it very well
I'm sorry, I don't get the logic. Please set me straight. M.E. is AIDS that was in a body that defeated the "AIDS virus" which was not HIV to begin with, must have been a different virus because there is no HIV present to cause the AIDS, but because it resembles AIDS in severe cases, it must therefore be AIDS? Just not quite seeing where to end the recursive loop? Thanks Lisette
CFIDS/ME was called Low Natural Killer Cell Syndrome in Japan for years. Something is definitely going on with it.
Yes, you are right. I think that the CDC, etc. doesn't want to open this can of worms. I bet that if chronic fatigue patients and others had their CD4's tested that they would be lower than the healthy population. One interesting thought, HIV- persons at one point had viral load testing done and many were coming up with high viral loads. This inconsistency didn't look good for the hometeam, so now it is not recommended that HIV- persons be given this particular test. When things don't add up, the government finds a way to cover it up!
I've actually brought this up on a different forum awhile back. It should be talked about. First of all, to ignore the fact that CFIDS/ME/Fibro rose concurrently with the HIV epidemic is just a river of denial. I've asked many times if we are just HIV Negative AIDS cases. Or if we were able to somehow kill the AIDS virus, but it left us with permanent immune dysfunction. I've met many CFIDS/ME patients who present as HIV Negative AIDS, they catch every sickness, their immune systems are nearly gone. And yet, they are HIV Negative. I have personally gone through years where I've caught everything and it seemed my immune system was totally down. An interesting question someone once brought up was, where are the cases of Gay CFIDS/ME? Why are there not alot of CFIDS/ME patients in the Gay community? What happened there? You either have HIV or there's nothing? What happened to HIV Negative AIDS? We heard about it for awhile, and then.........Press Blackout, nothing. And everyone with CFIDS was suddenly finding that the name was being downgraded to just CFS, removing the very critical Immune Dysfunction from the name. This is a subject that shouldn't be ignored and really needs real answers.
