I went out to dinner with friends yesterday, and woke up in so much pain. Full on flare. The payback was NOT worth it. I loved seeing my friends, they were in from out of the country and they made time just to see me before they went back. The food was very good, too.
I had to take pseudofed just to go out with them or I would have been too lightheaded, weak and dizzy from the POTS. I wasn't lightheaded. But I felt like I was using energy that wasn't mine. And I had the pain on the side of the heart the whole time from the POTS. Forcing the blood pressure up is not the smartest idea, but I haven't heard anything from idiot docs on what else to do.
I didn't expect to be in this much pain today. Worse than if a truck ran over me. Pain, fatigue. Mostly screaming pain. I couldn't walk across the apartment today. And briefly thought of going to the ER, but of course, they wouldn't do a thing if I did. They would act like I'm some druggie. They have no clue. So I didn't go.
I finally caved in tonight and too a muscle relaxant. I only took tylenol with it. I can't take NSAIDS, and aspirin gives me gout attacks. Narcs never really touched this pain.
I have a doc appointment later in the week, and I'll ask her again if there's anything for the pain. Why they don't come out with newer pain killers, I don't know.
I don't know how much longer I can do this. There's just no life from it. The pain is not worth anything.
Pills for Dessert
Blog entry posted by Carrigon, Jan 4, 2012.