So, I came from work tired, I was with family in the table while having dinner. I was not symptomatic , just tired. So I put my head down in the table to rest. I don't remember if my husband moved me to the couch or if I did, All I know is I couldn't have made it to the bed upstairs. But when I am like that the first thing to go is the voice, so I couldn't ask to be put flat.
It felt like when you are sleep and you try to wake up and move but you cannot. I felt in terrible pain, I guess because of the position I was in. I tried to ask for help but I couldn't. I started crying out of desperation, apparently that did happened physically, but My husband thought I was having a bad nightmare, the last he could have imagined was that I was awake crying for help.
I cried out of desperation, the pain and craps were pretty horrible, I knew I needed to lay flat. No words would come out and I felt them leave the house to let me rest. I was pretty scared at that point, my lung started to spasm, like our legs and arms do when we are tired. I felt like a heavy elephant was in my chest. I kept going in and out of it like for 2 hours. Hubby came and woke me up and gave me electrolyte and after a bit I could go back to the bed. I was gone all night and felt "normal" when I wake up. I had my white tongue like when I get when I crash (I think is low potassium).
I have not been paralyzed in a while and I have been less symptomatic than I have ever been in 6 years. I don't understand!!!!
I need a plan of communication: lay me flat, I need pedyalite, I need to pee..... While you cannot communicate, And if I go to hospital??? Wat could they do for me? I am in such a loss here, please help me out!!!!
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Blog entry posted by lnester7, Sep 6, 2013.