I recently read that FIVE out of SEVEN diagnostic criteria outlining ME CFS include PAIN. It boggles my imagination that Phoenix Rising Forums do not address PAIN. We still have XMRV in the forum section, but not PAIN.
I think this is a problem that Phoenix Rising should address. I think this is a priority.
Although I tested positive for the lab contaminant XMRV, I don't think we even need an XMRV Forum any longer. (IMHO)
I do live in PAIN everyday as do so many others here. I would like to know how other people are dealing with this. PAIN is so central to this disease. I feel like we could all benefit from the opportunity to share and learn from each other. That's what PR does best!
I would love to see this Phoenix rise from it's ashes and address this important issue. I love and support PR but not having a PAIN forum makes no sense to me. If there is a good reason not to have a PAIN FORUM, then please share it with me. I can think of Five good reasons to have one!
Please like this post so that the administration can get an idea of what people think.
PAIN: FIVE OUT OF SEVEN
Blog entry posted by Xandoff, Apr 1, 2013.