Don't you hate it when someone tells you they KNOW all there is to know about something you have healthwise, and you try to explain to them the latest research and stuff, and they still don't want to hear it.
I was contacted on another site by someone who claims to have worked in critical care for alot of years. And she was like, I want to talk about your Hashimoto's. And when I explained to her that I no longer take the levothyroxine, since it made me sick and my doctor said I can treat it symptomatically, she really let me have it. She was going on and on about how you have to be on it forever, you can't just start and stop it and blah, blah, blah. And I said, first of all, the latest research shows it is a wheat allergy that manifests as an attack on the thyroid gland. Second of all, there is a form of it that does not respond to levothyroxine treatment, plus it's a horrible drug that doesn't do half of what it's supposed to do and makes alot of people sick. And in the cases of CFIDS/ME, often times our thyroid will start and stop, the hormone levels dip and raise. There are many doctors who treat CFIDS/ME who actually argue against treating the thyroid problem because it tends to even itself out over time with this disease. And sometimes you just need a temporary boost for it. In my case, sometimes all I need is one pill every ten to thirty days and I'm okay with that. Anymore and I get really sick on it. CFIDS/ME patients do not respond to meds the way other people do. We're often hypersensitive and have to be treated completely differently than people who do not have our illness.
So, anyway, she was really looking to fight with me, and told me I was completely crazy and she KNOWS all there is to know about Hashimoto's. And finally, after enough of her calling me nuts, I blocked her.
I feel it is not my job to educate someone, if they don't want to know it and won't do the research. And honestly, I really didn't even want to discuss it. It wasn't a healthsite she went after me on. It's a social site where I had responded to a disability question and had mentioned I have Hashi's. And then she PM'd. Maybe she's just one of those know it alls that likes to throw her "authority" around. I don't know.
Over the years, I've met way too many people who think they know stuff about our illness, and they know nothing. Especially, healthcare workers. Like the idiots at the clinic I went to for my sinus infection who didn't care that I told them I have POTS and still wrote on my chart high blood pressure, when I have a low blood pressure condition. I'm just so sick of dealing with bad healthcare workers that are uneducated and have no interest in learning anything new.
50 experts and 171 advocates oppose the HHS/IOM Contract to re-define ME/CFS.
Check out our IOM Contract Forum for the latest news and to join the campaign.
Demonstrations in San Francisco Dec 9th and Washington D.C. Dec 10th
Mini Rant on People Who Think They KNOW Everything
Blog entry posted by Carrigon, Mar 3, 2012.