I went skating!! I have been pushing my limits and I know I need to account for ME so I don't relapse, but I always like to do this to see what is OI vs Deconditioning (which I believe is BS).
I had a full day, did not rest nor stop one second, I have been socializing, playing with my kid, went out, made dinner, laundry......
I have no symptoms when I am on current dose. My muscle pain is gone, I am even sleeping great but what surprises me the most is NO PEM, no PENE and just the overall sense of being feeling great.
The main thing is the little things that we learn to live with, like every time I need to go upstairs is like ohhh no I need to go up, vs now if I need something from the second floor I just go get it, I do not think about every single movement, how to safe energy or how to make everything with the less amount of effort possible. My head is clear (only while dose is on my body, as soon as dose runs off it feels titanus like in brain again).
I also been exercising, 2 miles in treadmill. No PEM from that. Is just amazing, I will hold back again to make sure this is sustainable and work my way up slowly.
midodrine 10mg per day (day 4)
Blog entry posted by lnester7, Dec 28, 2013.