Quote from the IACFS conference point in this matter.
I am soooo relieved somebody brought this up (specially an experienced Doctor) and I am willing to discuss this now.
By far the freakiest symptom and scariest one: the thing about this disease is those periods of time where I cannot account for or remember at all, Or those were I partially remember parts but not others (specially with great implications).
I remember I had file important paperwork and I have no clue the info I put down in there. I remember bits of pieces of me struggling with my birth date or name... Imagine the quality of the rest of the data I filled!!!
I remember in cases me driving and freaking out no idea where I was or how I got there. Or being suddenly with people feeling disoriented and having to act normal while my brain was trying to organize, who are these people, how did I get here, what just happened... and keeping your cool so you don't look completely insane while internally you freak out about the implications of what just happened and how is this even possible.
I never gave this symptom much thought in the analysis sense and try to figure out, since I have more brain issues than most, I put it down to that and just worried about the next symptom. They popped up faster than I could analyze, or keep up with. This was during my worst period. Was more noticeable as my husband joined in and tried to pay bills where the account info was all over the place.
The best way to explain it is like when a woman has a baby and you block out the hours of pain, you remember bit and pieces but we black out most of the worst parts. I wonder sometimes if is a body protective mechanism or a type of extreme brain fog.
All I know is I am soooo glad I don't have this anymore. Knock on WOOOOOD!!!!! My current one when I am tired is that people talk to me and for the life of me I cannot understand what they say (like they are talking in a different language). When tired, I am unable to process words into what they mean. I think that was found in my neurophsyeval.
Memory Loss (blackouts)— literally can’t remember some periods of time
Blog entry posted by lnester7, Mar 20, 2014.