I was up on my feet today only for 30-45mins and with only that now have sore calves and there is also like over active nervous system feel in my legs making me want to move them while at the same time knowing that will bring in the ME more (restless leg syndrome?..thou they currently arent all twitchy).
Im worried about getting the calf pain for basically not much reason at all (I wouldnt be concerned if I knew I'd over done things and triggered it..but this feels like its happened for no reason at all). It could mean Im soon going to be heading into my old symptoms of permanent muscle pains (and FM with me usually follows that. Ive been lucky and havent had FM for a long time).
Im usually able to double that time in a day on my feet, if its broken up time, without causing worst symptoms.
My throat tonight is a bit sore (only a 2 out of 10..where 10 is swallowing like razors) but that has increased from about the 1/10 Ive had on and off for the past month and a half. It was sore too this morning when I awoke.
The cooler air has once again set of a cough. Ive had this cough off and on now for the past 2 mths...
I still have the insomina thou the new dose of melatonin I think now is helping a little as Im going to sleep now at 3-4.30am instead of 6.30am
Ive noticed Im getting more mind mind black out happening again. I had one while my boyfriend was talking to me the other day and today.. was having about 5 per hr while trying to watch a DVD (so kept on having to rewind it and watch parts, sometimes long parts again).
I also arent lasting the day awake anymore either.. Im falling asleep while doing things for past few days (this has been on and off for past couple of weeks) between the 5-7pm. Then by 9pm Im then wide awake.
With these sleep attacks..thou i feel tired some, I arent even aware Im about to fall asleep and just do. Today between 6-7pm I fell asleep on and off about 6-8 times in one hr completely disrupting what I was trying to do)
Im scared as I know I havent got any doctor who will treat my symptoms so the idea that Im worsening for no reason.. well is quite a horrific one to me as I have no idea where my slow worsening state (which has been worsening over past 2-8weeks) will end up stopping.
My body seems to be no longer in the stable kind of unwell state it was but in a very slow decline.
Possibly this slow decline over past 6-8weeks, worsening even more in past week or two, has been triggered off by me "trying' hard to get home support (which has been quite stressful but still hasnt happened) and by the small amount of advocacy I was doing.
Emotionally thou Im actually doing better then I was and my brain too...something is still improving there (I think the selenium or the molybdenum is still helping)..
its physically Im slowly declining in (thou I are having emotional meltdowns whenever I crash).
I think Im slowly getting worst again over time
Blog entry posted by taniaaust1, Nov 26, 2011.