educating your doctor and you

Blog entry posted by Andrew, May 21, 2010.

Some patients report that their doctors ask for information about ME/CFS. This list helps fill that request. It also includes information for ME/CFS patients who want to understand the illness. Keep in mind that there are no high-probability treatments for ME/CFS. All we have are treatments that help some people. I've attached it here as a PDF. It's still a work in progress.

Please be aware that some of us never mention ME/CFS to our doctors. We have found that once we do that, the doctor no longer takes our individual symptoms seriously, and they tend to see us as fatigued people. So we describe the symptoms without mentioning ME/CFS.

reading list updated Sept. 25, 2017

Attached Files:

  1. Lesley
    I know it took a lot of work to pull this together. Thanks!
  2. Andrew
    Hi Jace. I'm not sure what problem you are having with the PDF. On my computer if I want to open it from this website I just click on it. My browser gives me the choice to view it or save it to my computer. That's all you need to look at it, save it, print it, etc.

    If I wanted to modify it for your own use, then you would copy and paste its contents into your word processor. To do this, first open the PDF, go Edit|Select All. Then go to Edit|Copy. Then paste into your word processor.

    If you simply can't open it, you need the free Adobe Reader which is available at the Adobe web site.
  3. jace
    Thanks, Andrew. Educating our doctors is important. I can't copy and past from a PDF though - can anyone tell me how to do it?

    I'd like to add Gerwyn's guide here and the Canadian guidelines for medical practitioners - available for 80p per copy (full colour, swish edition) plus 1 p&p in the UK at present from

    Invest in ME
    PO Box 561
    Eastleigh
    Hampshire
    SO50 0GQ