i wrote in a separate post about my experience this past year taking valcyte + famvir.
today is the 1 month anniversary of my stopping them, and my functioning has been dropping consistently since getting off the drugs.
i used the available energy i had in the best month of the treatment to launch an online cooking show + blog where i talk about my experience being ill, show you how to make chronic illness friendly meals, and give tips for working in the kitchen when energy is limited and you want to nourish your body with good, healthy food.
It's called: In The Kitchen, Keepin' It Real and you can watch the cooking with chronic illness episode here:
and read the blog post where i come out to the world about my ME/CFS here: http://inthekitchenkeepinitreal.com/im-coming-out/
i filmed 13 total episodes over the course of 4 different days (needed to give myself resting time in between of course)---this is one of them. if my current state improves enough for me to continue, there will be more episodes like this one specifically geared towards this end. i'm using all of my own tricks right now for myself, and i want to make sure to share them!
thanks for checking it out and i hope people are as well as possible xo
50 experts and 171 advocates oppose the HHS/IOM Contract to re-define ME/CFS.
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Demonstrations in San Francisco Dec 9th and Washington D.C. Dec 10th
Chronic Illness friendly Cooking Show
Blog entry posted by keepitreal, Jan 15, 2013.
About the Author
Due to improvement with anti-virals I launched an online (gluten-free) cooking show in order to share hope through my own story, nutritious food, entertainment, and validation. "Cooking with Chronic Illness" is aimed specifically at folks who have low energy and want/need to cook without breaking the energy bank. Feel free to "follow" me by either subscribing to my show/blog, or on here! you can subscribe via my blog: http://InTheKitchenKeepinItReal.com hope you are as well as possible xo ariyele