Hello again everyone,
After some interesting and informative interactions at another forum, and upon the advice of several members there, I've decided not to continue sharing personally here (or there... I won't be sharing anywhere for a while), at least not for the short term. The following are my reasons:
1. Privacy. I've already revealed quite a bit of personal information. Now that I'm going back to work, I don't want to take the risk that the stigma of having ME could cause me professional problems. This should only be a short-term consideration until, hopefully, I get established enough to afford to share more.
2. Time and energy constraints. I'm embarking on a pretty ambitious career in ME-related biomedical research. My remission has allowed me to function at 90-100% of normal but unlike a normal person, I can't push myself to do that "110% effort" without risking relapse.
3. I've seen some concerns raised here regarding the efficacy of one of the components of my treatment.
4. After considering some of the feedback I've received, I decided that I don't feel confident announcing that my treatments were successful until I've had a longer remission than three months.
But I will be back! I also may participate occasionally in the scientifically oriented threads.
Also, If anyone wants more information I'll be happy to communicate via PM or email.
Thanks to everyone for your friendly, supportive attitude and you'll be hearing from me again soon
I assure you no slow animals were harmed in my treatment process ;-p
A necessary compromise
Blog entry posted by KNXiaohe, Dec 16, 2013.
About the Author
KN is in remission from lifelong ME/CFS/? and two other chronic illnesses. The storm started at age 3 and all her developmental windows were smashed so she never got a chance to establish herself as a "person." After getting off the prison bus, she's attempting to construct a decent approximation of a human identity, starting off with applications to grad school to research systems biology.