1. 
   Prisoners Of Pain

   [media]

   Xandoff, Apr 22, 2013
2. 
   NO PAIN (FORUM) NO GAIN

   “Why not go out on a limb? That's where the fruit is.” ― Will Rogers It seems PR does not want a specific Pain Forum in spite of the fact that FIVE out of SEVEN diagnostic criteria used for this illness spell out pain as a primary complaint. Can anybody, moderators, peeps, folks tell me any good reasons NOT TO HAVE A PAIN FORUM at PR? If you surf through all the topics and conversations on...

   Xandoff, Apr 8, 2013
3. 
   Video of Dr. Kenny De Meir Leir on ME and Pain

   This is a video for all of you out those out there dealing with pain and ME. Please like this post is you think PR needs a Pain forum! [media]

   Xandoff, Apr 2, 2013
4. 
   PAIN: FIVE OUT OF SEVEN

   I recently read that FIVE out of SEVEN diagnostic criteria outlining ME CFS include PAIN. It boggles my imagination that Phoenix Rising Forums do not address PAIN. We still have XMRV in the forum section, but not PAIN. I think this is a problem that Phoenix Rising should address. I think this is a priority. Although I tested positive for the lab contaminant XMRV, I don't think we even need an...

   Xandoff, Apr 1, 2013
5. 
   DID YOU GET A FLU SHOT THIS YEAR WITH ME CFS?

   I am just curious as to how many people get a flu shot who have ME CFS. I haven't had a cold in eight years and I think the last time I got a flu shot before I knew what I had and it made me crash. What is anybody's experience with Flu shots out. I believe my immune system is too shot to deal with a shot. When I tell my local non ME CFS GP that I don't want a FLU shot I get the eye roll....

   Xandoff, Jan 13, 2013
6. 
   TAKE YOUR VITAMIN D3 with GcMAF from GcMAF.eu (Immunno Bio Tech)

   VITAMIN D3 is very important to take while using GcMAF from GcMAF.eu. I spoke with my Doctor and David Noakes from Immuno Bio Tech (GcMaf.eu) and he says it is very important to continue your supplement of D-3. I was confused by reading many posts that discouraged taking GcMAF from GcMAF.eu with Vitamin D-3. Also I would like to say that Immuno Bio Tech GcMAF.eu and David Noakes are fantastic to...

   Xandoff, Jan 9, 2013
7. 
   Pain in Patients with Chronic Fatigue Syndrome: Time for Specific Pain Treatment?

   http://www.painphysicianjournal.com/2012/september/2012;15;E677-E686.pdf Pain in Patients with Chronic Fatigue Syndrome: Time for Specific Pain Treatment?

   Xandoff, Oct 18, 2012
8. 
   Ground Hog Day: Another Call for a pain Forum at Phoenix Rising

   To all of those with ME CFS who suffer with chronic and severe pain that is not adequately controlled due to a variety of complex issues. We suffer everyday. Everyday that we get up, we hear the proverbial radio alarm pronouncing it is once again Ground Hog day with Sonny & Cher singing "The Beat Goes On". (American Movie reference starring Bill Murray, who is trapped to repeat Ground Hog Day...

   Xandoff, Oct 17, 2012
9. 
   Overlapping Pain Conditions

   [IMG]

   Xandoff, Aug 7, 2012
10. 
    Creating a new Forum for Managing Pain under Treatment & Therapy?

    Hi All, How would everyone feel about creating a new Forum just for managing pain under the Forum category for Treatment & Therapy. I know that we all deal with pain and some of us deal with co-morbid mechanical pain that is amplified by our brain. (my theory) I understand that we don't want to clutter things up but I feel this is a very important topic. Dealing with chronic pain is a theme I...

    Xandoff, Aug 6, 2012
11. 
    Anybody trying an Oxygen and Saline infusion for chronic pain?

    Hi All, Has anyone used a Oxygen and Saline infusion for chronic pain? It seems intuitive to me that this would be helpful for my chronic pain. Any advice or experiences would be appreciated. I think my CFS ME specialist who I see every four months (360 mile round trip) would consider giving me an infusion if I had the details. Currently taking GcMAF.

    Xandoff, Aug 2, 2012
12. 
    Cause I believe there is a place where we belong

    [media] Peter Gabriel Don't Give Up lyrics Songwriters: Hyler, Tamara Janine / Smith, Shaye / Ebert, Alexis In this proud land we grew up strong We were wanted all along I was taught to fight, taught to win I never thought I could fail No fight left or so it seems I am a man whose dreams have all deserted I've changed my face, I've changed my name But no one wants you when you lose...

    Xandoff, Jun 2, 2012
13. 
    9 Years of Chronic Pain

    Lurkers, members and my fellow Brothers and Sisters. I have been in uber pain for 9 years now. Never found a pain clinic clinic that wasn't some kind of inept money mill. Have done the works with Docs who didn't understand my illness and one who does. Acupuncture helps but who can afford it? Opiates ....although they make me feel like I did before I was ill they don't work over time. I balked...

    Xandoff, May 31, 2012
14. 
    NJ Governor Christie proclaims May 2012 as Chronic Fatigue Syndrome Awareness Month

    Does anybody know how I can get a copy of the NJ proclamation to post on my Facebook page? It also says that CFS is also called Myalgic Encephalomyelitis. I can't seem to cut and paste the document that NJCFSA sent me. Any help would be greatly appreciated.

    Xandoff, May 2, 2012
15. 
    Has anybody seen this lecture by DR. Kenny De Meirlier at Mt Sinai in NY on 11/2011 ?

    Grettings and salutions! I just found this video of Dr. De Meirleir and I it is very informative. My Doctor just had my blood sent out to Belgium for the Nagalase teast on March 7, 2012 and for my vitamin D levels. I am XMRV positive and just came off 14 months of Valcyte which did help. I have also just titrated my LDN from 1.5 to 3.0 mg with great results. GcMAF Treatment for ME/CFS Six...

    Xandoff, Mar 28, 2012

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