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Blog entries from taniaaust1

taniaaust1 has a total of 48 entries.

  1. taniaaust1
    i was walking about my house today.. only half dressed.. with my front wooden door open.. when suddenly saw a guy coming at my door (hopefully he didnt see me half dressed at that point!!!). I fled into my room to get dressed. It turned out to be the guy from DisabilitySA again. Turns out I forgot I had a home visit. Then someone calls me and makes me remember I was meant to ring the housing...
    taniaaust1, Jan 1, 2013
  2. taniaaust1
    I had to get a referal for the CFS specialist next week and no way could I handle the thought of going back to my old GP for one, so had to go to a brand new doctor to get one. (so I went to one in the next town as none in my own town are suitable) I arrived at right time and right day but at the wrong clinic. Two different appointment stuff ups for that day , my eye appointment that day...
    taniaaust1, Dec 17, 2011
  3. taniaaust1
    It's that time again and Christmas isnt even here yet but Im now so washed out and hence worried how in earth are I going to make it throu the xmas period. Today so wiped out that Ive only been out of bed 4 hrs today, got out of bed at 2.30pm then fell asleep while trying to watch something on tv at 6.00pm (was feeling so exhausted) and only recently woke back up 11.pm (and feel like I...
    taniaaust1, Dec 14, 2011
  4. taniaaust1
    Tomorrow they have a retired ME/CFS specialist (Dr Ian Buttfield) giving a talk on ME/CFS and different medications, What to ask or tell a new doctor, How to manage your different ME/CFS symptoms. Id been looking forward to possibly going to this talk for the past couple of months and was very upset earlier today due to the no transport help situation as I didnt think I was going to be able...
    taniaaust1, Dec 2, 2011
  5. taniaaust1
    crap I forgot the name of the person who showed up to see me (He didnt have business card with his name to leave and now I cant even find the paperwork with his name on it). Anyway. I put to him the question "why I was instantly rejected by him for support when another org had rang him trying to arrange help for me". His reply was he rejected my case due to it being rejected in the past by...
    taniaaust1, Dec 1, 2011
  6. taniaaust1
    Tomorrow.. well actually its today now being 5.30am right now as I havent been able to get to sleep, I have another meeting at 11.30am to once again beg and plead for some home support. Thou physically I are no better then my normal. I had the proof today that my brain is certainly becoming better. :) I managed to with some help, get a page going on the internet wikipedia on Orthostatic...
    taniaaust1, Nov 29, 2011
  7. taniaaust1
    I was up on my feet today only for 30-45mins and with only that now have sore calves and there is also like over active nervous system feel in my legs making me want to move them while at the same time knowing that will bring in the ME more (restless leg syndrome?..thou they currently arent all twitchy). Im worried about getting the calf pain for basically not much reason at all (I wouldnt...
    taniaaust1, Nov 26, 2011
  8. taniaaust1
    My new plan of action is to document everything which happens in regard to services which should be helping me.. their rejections as a blog. Im leaving a paper trail one can say to make sure when I take action down the track (a big discrimation case is brewing up here), I can prove all Ive been throu. (as i have difficulty with organisation and memory.. I always tend to forget those Ive...
    taniaaust1, Nov 23, 2011
  9. taniaaust1
    I guess maybe some have been saying some prayers for me as I had what I'd call a miracle happen. I was to the point where I couldnt bear going to a doctor and having my POTS and collapses issues ignored by them once again but I went to see my CFS specialist today took me a week to force myself make a needed appointment, (crying before I went cause I was so sure that this would be a...
    taniaaust1, Nov 15, 2011
  10. taniaaust1
    Ive cried for hours today.. I guess it was stupid but I got my hopes up thinking a doctor may be able to do phone or email consults with me, desperately hopeing that due to my circumstances a face to face visit may not be expected. but unfortunately the reception of the surgery didnt pass my email to the doctor and has said I have to see him face to face.. and when I then mailed back asking...
    taniaaust1, Nov 14, 2011
  11. taniaaust1
    My house was broken into and lots taken (they smashed my back door) about 8mths? back. I knew three of those certainly responsible but unfortunately only one of those admitted to police he did it and was changed. (He was a child so didnt really get penalised for the robbery, the others are adults who are smarter so getting away with it including someone who was my neighbour at the time.....
    taniaaust1, Nov 13, 2011
  12. taniaaust1
    After being so sick for 14 years while living in the same town (except for 6mths I lived with a doctor elsewhere), I just found out that there IS disability services for people like myself in this country town after all. Why have my doctors NEVER told me about this!!!! They are the ones who refer people to the org I just got told about yesterday. The doctors here even supported me move out...
    taniaaust1, Nov 9, 2011
  13. taniaaust1
    I needed an appointment with my psychologist/counsellor but yesterday when I went to make one I got told she was completely booked out and had none available to next year unless she worked an extra day she didnt want to work so they said they'd ring her. They rang me back today and fortunately another patient has just cancelled so Im able to take that appointment today :) . Im feeling so...
    taniaaust1, Nov 8, 2011
  14. taniaaust1
    The other day I rang the emergency mental health number I'd been told to ring when in emotional crisis at 6.30am being upset with how bad my family is (no support at all) and due to the severe insomina Im getting so at 6.30am I still havent been able to sleep at all. I get so so tired but cant sleep and then fall asleep when trying to do activities (I once fell asleep in the sink while doing...
    taniaaust1, Oct 12, 2011
  15. taniaaust1
    I woke up this this morning and the ME wasnt good at all. My boyfriend woke me up when he arrived and all I could do is lay in bed for a further 3hrs (till 1.30pm), to exhausted and dizzy (and with a sore throat) to move (I started shaking just to sit up and have a drink). Today thou is my shopping day so I ended up having to get up when I was finally to the point where I felt I could do...
    taniaaust1, Sep 2, 2011