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Experts Reflect on the FDA Stakeholder Meeting
Joel asks a variety of leading doctors, researchers and advocates for their reflections on the FDA Drug Development Workshop
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Phoenix Rising ME / CFS Forums
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Blog entries from margib
margib
has a total of 15 entries.
What Tiger & I Have In Common
Tiger Woods & I may have one thing in common: we have both had our blood spun (I believe thats the past tense of blood spinning). Another branch of Neural Therapy is having blood (as opposed to platelets, like Tiger allegedly has) extracted, mixed with homeopathics, & injected back into your body on an area in need of help. This is called auto-sanguis. This type of treatment is something...
margib
,
Dec 19, 2009
I Got 99 Problems, but a Doc Ain't One
Hit me! Cue Rick Rubin & his bug, puffy beard in a black & white grainy film. He waves my test results around. The music screeches to a stop. Metametrix Urinalysis/blood work just came back. These are not exciting results, but they're results, nonetheless. Dr. Anonymous recommended supplements, based on these findings: Older blood work that showed continuous low ferritin (but high...
margib
,
Nov 18, 2009
I Got the Chronic (The Lakers Beat the Supersonics?), or Chris Cornell & I Will Never
The thing about this illness that I so often forget, because I'm focused on the fatigue part: it's chronic. The way migraines, Diabetes, or back pain are chronic. So, to cope with any orthostatic intolerance (OI) or generally debilitating feelings of fog-head & paralysis, I watch TV. My need for pop culture/pop music needs quenching still, as, growing up, we were one of the few secular homes...
margib
,
Nov 16, 2009
The Big Bang
Dr. John Lathrop has a phD from Harvard in astrophysics. He has been teaching me about the stars for as long as I can remember. He is my father. In their early days of dating, my mom once introduced him as an ivy league astrologer, & he didn't correct her (she was merely nervous, not ignorant--she went to Harvard, too). He's that kind of person. He has made me smart both intellectually &...
margib
,
Nov 5, 2009
Missing Nirvana
In 1993, my neighbor said I was the sickest person she'd ever seen live to tell about it. Most people have a flu story, a sick story, a food poisoning story, a once-or-twice-in a lifetime experience that is over in 3 - 7 business days. Mine has sort of never ended. Although I believe I was initially infected in 1990, I was able to live a normal life, symptom-free except for chronic sore...
margib
,
Sep 28, 2009
Wtfwjd???
Sometimes I think I'm okay, I'm going to make it, this isn't so bad, & sometimes I think, I'm only trying not to die every day, & this might be the best it will ever be. It is hard to be the one on the list that no one knows what to do with, even the professionals & the experts. This is one of those days that I can't shake. Even at about a 5 with a B-12 shot, I quickly dwindled to a 3....
margib
,
Sep 9, 2009
Re-birth
Why I like birth? Everything to do with birth? Because it feels like a do-over. Every birth I've been to has been special, each one different, & I've felt lucky & honored to be there. Like witnessing a re-do of my own life. At a birth, right before the baby is born, time stands still, & you can feel & smell & see the time stop. It is a magical occurrence. After it stops, it starts up...
margib
,
Sep 2, 2009
The Important Number 2
My level of functioning today. More importantly, your age. 2: The number of times in an hour you ask me to play. 2: The number of times I say no. 2: The number of words in the phrase, I'm sorry. I'm trying, but I'm so weak. I am used to being weak sometimes. But you are not used to seeing it yet. I can't decide if you should be.
margib
,
Aug 27, 2009
My Super Power Makes Me Ironic Girl!
My food sensitivities are finally catching up to me. A few weeks ago, I felt my throat close up after eating pumpkin seeds. I know that food category can be a little weird for people, so I didn't think much of it, until last night, when my throat started to close after eating a spirulina bar, then realizing I had also gotten a reaction from salmon & avocado. PUMPKIN SEEDS, SALMON, SPIRULINA, &...
margib
,
Aug 27, 2009
Eeny Meeny Miney Mo & Ciao!
I'm trying to catch any anatomy of the Year of the Tiger. I want 2010 to be here, to wipe this year off the map. Eeny meeny miney mo is also how, you may have observed, dear readers, I seem to choose my supplements. Today I did one dose of Asian goo. I finally realized where I recognized the taste! It is the same taste I had from supplements I used to buy when I lived in Florence (they have...
margib
,
Aug 25, 2009
Strikes & Gutters
I was at a 3 when I got up today, sooo exhausted, & took the Fluconazole, realized I still had an empty stomach so gave the lactoferrin a whirl (it does have , after all), then felt brave enough to try the Asian goo, which was my one hit of sugar for the day. I also felt much better after skin brushing & a shower (I had to wash those metals right out of my hair!), which brought me well above a...
margib
,
Aug 25, 2009
So You're Saing There's A Chance
...that B-12 is too much to take b/c of the mercury/metals, that I should be taking MSM to clear it...what next? I'm so confused! I think I was again sidelined by an encounter with some delicious rice/corn chips; if I don't get a hold of DN soon, I will totally lose my mojo to become a full-fledged raw foodie. Today was another 5. A little brain foggy & fatigued, especially after eating...
margib
,
Aug 24, 2009
I'm Talking About Drawing A Line In the Sand, Dude (Or, Hey, Careful, Man, There's a
Also, Dude, Chronic Fatigue is not the preferred nomenclature. Myalgic Encephalomyelitis, please. I have drawn a line in the sand when it comes to coffee & milk in the mornings. For this, I may not budge on. It is my Shomer Shabbos. Besides, both goat & rice milk taste pukey & hemp milk is too expensive. Soy? Too chalky. DN makes her own almond milk, but I think I'm probably still...
margib
,
Aug 23, 2009
Calling Mike Dessin
I really want to go to Ohio. I know I'm not even on the long list, but I need help. I know I listed my functioning as a 6, but it doesn't reflect that I'm functional about 1/3 of the day about 1/3 of the week. Yesterday, I was a 5; not too tired, but brain-fogged. Then I ate a delicious lunch of hamburger on gluten-free bread (is nothing sacred? I didn't even use ketchup, for fear of the...
margib
,
Aug 22, 2009
Mercury, Please Retrograde
...right out of my body. Stop stirring around my brain & reabsorbing & poisoning me. I cannot get you out! Yesterday, I will call a 6, though toward the end of the day, immense brain fog & some serious fatigue kicked in. Compared to how scary last weekend was & how dark my mood has been, even sliding down the number scale was no big deal. Plus, I fully expect to be "tired" after taking...
margib
,
Aug 21, 2009
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