Blog entries from lnester7

lnester7 has a total of 105 entries.

  1. lnester7
    So I haven't blog in a while. I was trying to give the immunovir start up side effects some time to stop. And like the first time it got better 10days into it. I am more stable emotionally, decided not to blog in those 10 days because my emotions were allover the place. I slowly have gotten better. Not sure what is working but I have changed a few things. They changed my CPAP settings and...
    lnester7, Sep 24, 2012
  2. lnester7
    So I increased to 3 pills of imunovir, I have been crying on and off all day, My emotions are all over the place. I remember the first time I started the drug and I know it will pass. So when I want to cry I just give in and in less than one minute I am done. It is weird to explain, then I feel happy. I look like a completely nut case. I am not sad really I actually think this is funny (I...
    lnester7, Sep 12, 2012
  3. lnester7
    So I have been working for 40h a week now, Week one did ok, week 2 in progress. So far I had 2 crashes. The first one was in a picnic, in the heat, ate ice cream and did everything I was not suppose to do. Only crashed for a few hours and rested on the weekend. Second crash was on Chinese food (IBS full swing, and the worse that can happen DID!!!!:oops: ). I have no idea what is going on but I...
    lnester7, Sep 11, 2012
  4. lnester7
    So I started working. It went well, I was able to sit all day without feeling miserable. I didn't have a high pressure day, it was very easy day back. My HR has been really normal too since I started Imunovir again 2 days ago. I have more energy, and over all I can just do more. The burning in brain came back as soon as I started imunovir, so I think is a side effect of Imunovir for me!!!!...
    lnester7, Sep 5, 2012
  5. lnester7
    So I have been pushing my limits, I wanted to provoke a small crash, not a full on crash but one of those 4hours, I wanted to test my new limits, how much I can do before I get a crash. I am happy to report that I have not have one!!! And I have push my limits a lot. I have been on the gym everyday about this week. I did 30min bike and 30min weights. I have gone to the groceries, I went on a...
    lnester7, Sep 2, 2012
  6. lnester7
    Today I found myself for the first in a long time dreaming of a future. I have always been a dreamer, planning the next big thing. I had great dreams before my last crash. I had been feeling so good that this thoughts were back. I am wondering if this is it, that I will be able to lead a somewhat normal life. Can I do my Master degree, or do my own business? Today I felt the most normal I...
    lnester7, Aug 28, 2012
  7. lnester7
    This is meant to be a reflection, I was thinking last night, that CFS has humbled me as a person. I used to consider myself strong and independent. I got CFS and I did not handled it we AT ALL. I was so damn arrogant, and smart that I could solve it all. I was let down by myself and family, others really surprised me and I found support and help in very unexpected places. For the first...
    lnester7, Aug 24, 2012
  8. lnester7
    I had the TTT today. I went no food or drink after 12am. It was very simple, the bed was like a table. I lay there while they conected the heart and vital signal stuff. I also got hooked up to an IV. The Electrophysiologyst was in and out while I was upright. The first part of the test (20min) was uneventful. then they gave me hydroxy soemthing some drug under the tongue to provoke vasso...
    lnester7, Aug 24, 2012
  9. lnester7
    Sooo I went to see electro, basically he told me to push thorough it and exercise for POTs, I am also getting a TTT but he said that he didn't expect anything different, besides that I have mild dysautonomia. My respect to those with severe one!!!! He did give me Florinef to try. I started half a dose (.5mg) (he didn't tell me to do so, but I have seen posts here). So far sooooo good. Not...
    lnester7, Aug 22, 2012
  10. lnester7
    As some were worried about, I did crash with exercising. I have been kind of crashed for a few days but not too bad, just incapable of producing energy but other symptoms are tolerable. Having some mood swings but I think is the sleep med withdraw. I quit the temazepan that I used to fall sleep. I am still on trazadone 100mg to stay sleep but I am waking up about 4 to 5 times a night so not...
    lnester7, Aug 20, 2012
  11. lnester7
    Sooo I was symptom free pretty much at rest so I decided to add exercise again :confused: . First day was Good, I did 20 min of easy stationary bike. I got little burning on spine and head, not too bad :thumbsup: . Second day, I did 1h of easy bike. Got Really bad burning in spine and head, I am also now experiencing the weirdest pain in neck, kinda in the base of the skull (left side). So I...
    lnester7, Aug 18, 2012
  12. lnester7
    I have more stamina overall, I have been doing more with family on weekends but I get this small crashes too. I am wondering if I am really getting better, or if by just doing nothing, I don't feel bad as much. I am concerned about the progression of the disease and If I am going to get to my before crash level again. I have been asking the veterans CFSrs if the intensity of the symptoms...
    lnester7, Aug 14, 2012
  13. lnester7
    Sooo I have had great days! I am resting during the week and having close to normal life on weekends, I am running around and trying to participate more on family activities. This vitamin powder is really doing the trick. Unfortunately now that I am seeing progress I have to stop the imunovir for one month. I am trying to decide what to do to maintain my current state. I had a lumbar...
    lnester7, Aug 8, 2012
  14. lnester7
    I had a big crisis again about 2 nights ago, the burning in head was so hard I was crying and ready to curse the day I was born. I prayed, haven't done that in a long time, I have not received relieve in such a long time that I don't bother to ask for mercy anymore. The feeling of desperation was so big that I remembered the verse: 1 Corinthians 10:13 There hath no temptation taken you but...
    lnester7, Aug 3, 2012
  15. lnester7
    It has been some interesting days. Doing better in a way, I am finally feeling some progress. I was Banned from taking b12 from Dr because My levels were to high, So I kept away from the vitamin from fatigue to fantastic which is what I use to get out of relapse, the powder really works for me but it has 3 problems: Gives me Acne, Destroys my stomach and b12 in general is giving me angina...
    lnester7, Jul 31, 2012