Blog entries from lnester7

lnester7 has a total of 109 entries.

  1. lnester7
    So like I have been sick, I was not thinking about going out for trick or treat. Then as my kid was getting ready she said "mom I wish chronic fatigue doesn't exist" I just wanted to cry right there with the feeling of frustration, I try to hide it but she can tell now when I am sick. I dragged myself out there even if it costs me months to recover from this one, I did one last push. I...
    lnester7, Oct 31, 2012
  2. lnester7
    So I have been soooo sick since Friday, basically on crashed mode like when I started at the beginning of the year (my major crash). I got a cold or something still haven't figure out, not sure if it was a CFS relapse or a bug and just made CFS worse. Is scary that u can be doing so well and just a bug drag u back sooo much. So that kinda freaked me out. Is it me doing better just an...
    lnester7, Oct 31, 2012
  3. lnester7
    So I am not around as much because I am doing so much more this days. Exercise: I walk little here and there but not formal exercise yet. Sleep: Was doing great but starting waking up like 3 times again, I am backing off benzos or because of the cpap mask leaking not sure the reason. My white tongue is much better, barely noticeable. Diarrhea comes sometimes but is mostly gone. More energy...
    lnester7, Oct 16, 2012
  4. lnester7
    I have been on a good path the last few days. I went to GP and he increased my sleep meds to 300 to 400mg of trazadone. I tried 400mg and I only woke up once last night. I think I will stick to the 400mg. I added back my Vit Powder the last 2 days too. That thing really works for me and the fatigue. I went to mall yesterday (2h) and today I did my hair, Chores, walked 2miles w family!!! I...
    lnester7, Sep 30, 2012
  5. lnester7
    So I haven't blog in a while. I was trying to give the immunovir start up side effects some time to stop. And like the first time it got better 10days into it. I am more stable emotionally, decided not to blog in those 10 days because my emotions were allover the place. I slowly have gotten better. Not sure what is working but I have changed a few things. They changed my CPAP settings and...
    lnester7, Sep 24, 2012
  6. lnester7
    So I increased to 3 pills of imunovir, I have been crying on and off all day, My emotions are all over the place. I remember the first time I started the drug and I know it will pass. So when I want to cry I just give in and in less than one minute I am done. It is weird to explain, then I feel happy. I look like a completely nut case. I am not sad really I actually think this is funny (I...
    lnester7, Sep 12, 2012
  7. lnester7
    So I have been working for 40h a week now, Week one did ok, week 2 in progress. So far I had 2 crashes. The first one was in a picnic, in the heat, ate ice cream and did everything I was not suppose to do. Only crashed for a few hours and rested on the weekend. Second crash was on Chinese food (IBS full swing, and the worse that can happen DID!!!!:oops: ). I have no idea what is going on but I...
    lnester7, Sep 11, 2012
  8. lnester7
    So I started working. It went well, I was able to sit all day without feeling miserable. I didn't have a high pressure day, it was very easy day back. My HR has been really normal too since I started Imunovir again 2 days ago. I have more energy, and over all I can just do more. The burning in brain came back as soon as I started imunovir, so I think is a side effect of Imunovir for me!!!!...
    lnester7, Sep 5, 2012
  9. lnester7
    So I have been pushing my limits, I wanted to provoke a small crash, not a full on crash but one of those 4hours, I wanted to test my new limits, how much I can do before I get a crash. I am happy to report that I have not have one!!! And I have push my limits a lot. I have been on the gym everyday about this week. I did 30min bike and 30min weights. I have gone to the groceries, I went on a...
    lnester7, Sep 2, 2012
  10. lnester7
    Today I found myself for the first in a long time dreaming of a future. I have always been a dreamer, planning the next big thing. I had great dreams before my last crash. I had been feeling so good that this thoughts were back. I am wondering if this is it, that I will be able to lead a somewhat normal life. Can I do my Master degree, or do my own business? Today I felt the most normal I...
    lnester7, Aug 28, 2012
  11. lnester7
    This is meant to be a reflection, I was thinking last night, that CFS has humbled me as a person. I used to consider myself strong and independent. I got CFS and I did not handled it we AT ALL. I was so damn arrogant, and smart that I could solve it all. I was let down by myself and family, others really surprised me and I found support and help in very unexpected places. For the first...
    lnester7, Aug 24, 2012
  12. lnester7
    I had the TTT today. I went no food or drink after 12am. It was very simple, the bed was like a table. I lay there while they conected the heart and vital signal stuff. I also got hooked up to an IV. The Electrophysiologyst was in and out while I was upright. The first part of the test (20min) was uneventful. then they gave me hydroxy soemthing some drug under the tongue to provoke vasso...
    lnester7, Aug 24, 2012
  13. lnester7
    Sooo I went to see electro, basically he told me to push thorough it and exercise for POTs, I am also getting a TTT but he said that he didn't expect anything different, besides that I have mild dysautonomia. My respect to those with severe one!!!! He did give me Florinef to try. I started half a dose (.5mg) (he didn't tell me to do so, but I have seen posts here). So far sooooo good. Not...
    lnester7, Aug 22, 2012
  14. lnester7
    As some were worried about, I did crash with exercising. I have been kind of crashed for a few days but not too bad, just incapable of producing energy but other symptoms are tolerable. Having some mood swings but I think is the sleep med withdraw. I quit the temazepan that I used to fall sleep. I am still on trazadone 100mg to stay sleep but I am waking up about 4 to 5 times a night so not...
    lnester7, Aug 20, 2012
  15. lnester7
    Sooo I was symptom free pretty much at rest so I decided to add exercise again :confused: . First day was Good, I did 20 min of easy stationary bike. I got little burning on spine and head, not too bad :thumbsup: . Second day, I did 1h of easy bike. Got Really bad burning in spine and head, I am also now experiencing the weirdest pain in neck, kinda in the base of the skull (left side). So I...
    lnester7, Aug 18, 2012