Blog entries from lnester7

lnester7 has a total of 105 entries.

  1. lnester7
    I started ALC w ALA. I got a headache, like a high BP one. Also felt like pressure like in head, and felt very fluish all day. I forgot that ALA keeps me awake but this time it didn't. I will see how well I can tolerate and I will try to make it.
    lnester7, Jan 9, 2013
  2. lnester7
    So there is hope for a life. I went to animal Kindom, FL, USA. Is a theme park, I rented a scooter (kind of a whole family adjustment) and I did OK from 9:30am - 2pm By the time we left the park I crashed for 3hours, but I was just tired, I didn't feel miserable or had other symptoms. I have been traveling so much and I am still going. Have another work trip planned by the end of the month but...
    lnester7, Jan 3, 2013
  3. lnester7
    I have been kinda of crashed but this one was different. I was not fluish (CFS) or Unable to move paralyzed (CFS) nor head buzz need to lay down or will die way (POTs). It was more like I am in so much pain that if I don't lay my neck down will die way. Is a new one to me, I am trying to figure out if the Pain is because is a side effect of LDN or if it is because I am doing Sooooo much more....
    lnester7, Dec 19, 2012
  4. lnester7
    Holly Crap!!! I was doing so well, and I started LDN, first day at night I felt I had the flu, I slept great though :sleep: . It was ok and I went to work next day, it was rough but doable. Second day, I had terrible pain in my breasts and Lymph nodes, fluish. Then I crashed so fast and hard with no warning:aghhh: , I was coming back driving from getting lunch and I parked at work's...
    lnester7, Dec 14, 2012
  5. lnester7
    I am having a good week. Somehow I gained a point ( I am now at 7 from 1 to 10). The biggest blessing is the brain is not as noisy. OMG it is so good to have the brain a little more calmed.:thumbsup: I am surprised after all the traveling instead of been worse I feel better. There is something about the island that just remit my CFS.:angel: I am doing much of the same except I am doing a...
    lnester7, Dec 11, 2012
  6. lnester7
    I saw OI specialist, He prescribe the regular stuff, Compression socks 20-30mg, Salt (6g/d adjust per patient as needed), Water (1lit?), Raise bed 20cm....:confused: The difference was the training.o_O Theory: Dr told me that the brain is trained to shut off (you will pass out) when the blood flow is low (in 6 seconds or so) But that the brain can work longer. So the purpose of this...
    lnester7, Dec 11, 2012
  7. lnester7
    So here is my summary. She told me to be patient and that I will get better. Patience HA! OI: She asked me to do the florinef in half a pill at a time intead of all at once, I started inmidiately and it makes a big difference, she also told me to do an extra dose when I need to be standing longer. I was traveling and thoguht I wasn't going to make it, took half pill florinef as I felt the...
    lnester7, Dec 1, 2012
  8. lnester7
    So week's summary. I was doing so great but I crashed and burned Tuesday, So I had to miss work. The crashed send me to an emotional tailspin. I don't know how I manage to get so despaired when before I have gotten so much worse, I guess ones patience goes down over time. I got better and was in the office all day wed, and have being progressing slowly. I would say I am even higher than...
    lnester7, Nov 16, 2012
  9. lnester7
    Soo I was doing Ok. Then I crashed yesterday. I am not sure is a CFS crash but I think is POTs, But hey who knows is not like I have a Doctor to go to that can help me, the CFS specialist is 2 plane and months away for appointment, My GP just nods sympathetic and say how frustrating for him not to be able to help me. So nowhere to turn for answers. Maybe I can go and get GP to give me a IV,...
    lnester7, Nov 12, 2012
  10. lnester7
    So today I feel better. I have a day like when I have a cold and CFS goes into remission, weird after the crash. I still have a cold but very mild. I had neck pain but with the lotion (topical aspirin) was ok and manageable (ahh and 2 advils). I got POtsy (dizzy and was soooo close to pass out) at one point but CFS was very under control. Head buzz is there (but not much burning). I just...
    lnester7, Nov 3, 2012
  11. lnester7
    I know is not funny and don't mean to offend anybody but who wakes up with so many symptoms you have to choose what to tackle so you don't destroy the poor organs you have left working properly?!?!!? YOU got a winner! Today my cold / whatever virus/ Allergy, whatever combination kicking my butt and that has aggravated my CFS. I lost my voice. So do I take more mucinex to stop coughing? Is...
    lnester7, Nov 1, 2012
  12. lnester7
    So like I have been sick, I was not thinking about going out for trick or treat. Then as my kid was getting ready she said "mom I wish chronic fatigue doesn't exist" I just wanted to cry right there with the feeling of frustration, I try to hide it but she can tell now when I am sick. I dragged myself out there even if it costs me months to recover from this one, I did one last push. I...
    lnester7, Oct 31, 2012
  13. lnester7
    So I have been soooo sick since Friday, basically on crashed mode like when I started at the beginning of the year (my major crash). I got a cold or something still haven't figure out, not sure if it was a CFS relapse or a bug and just made CFS worse. Is scary that u can be doing so well and just a bug drag u back sooo much. So that kinda freaked me out. Is it me doing better just an...
    lnester7, Oct 31, 2012
  14. lnester7
    So I am not around as much because I am doing so much more this days. Exercise: I walk little here and there but not formal exercise yet. Sleep: Was doing great but starting waking up like 3 times again, I am backing off benzos or because of the cpap mask leaking not sure the reason. My white tongue is much better, barely noticeable. Diarrhea comes sometimes but is mostly gone. More energy...
    lnester7, Oct 16, 2012
  15. lnester7
    I have been on a good path the last few days. I went to GP and he increased my sleep meds to 300 to 400mg of trazadone. I tried 400mg and I only woke up once last night. I think I will stick to the 400mg. I added back my Vit Powder the last 2 days too. That thing really works for me and the fatigue. I went to mall yesterday (2h) and today I did my hair, Chores, walked 2miles w family!!! I...
    lnester7, Sep 30, 2012