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Blog entries from lnester7

lnester7 has a total of 98 entries.

  1. lnester7
    So week's summary. I was doing so great but I crashed and burned Tuesday, So I had to miss work. The crashed send me to an emotional tailspin. I don't know how I manage to get so despaired when before I have gotten so much worse, I guess ones patience goes down over time. I got better and was in the office all day wed, and have being progressing slowly. I would say I am even higher than base...
    lnester7, Nov 16, 2012
  2. lnester7
    Soo I was doing Ok. Then I crashed yesterday. I am not sure is a CFS crash but I think is POTs, But hey who knows is not like I have a Doctor to go to that can help me, the CFS specialist is 2 plane and months away for appointment, My GP just nods sympathetic and say how frustrating for him not to be able to help me. So nowhere to turn for answers. Maybe I can go and get GP to give me a IV,...
    lnester7, Nov 12, 2012
  3. lnester7
    So today I feel better. I have a day like when I have a cold and CFS goes into remission, weird after the crash. I still have a cold but very mild. I had neck pain but with the lotion (topical aspirin) was ok and manageable (ahh and 2 advils). I got POtsy (dizzy and was soooo close to pass out) at one point but CFS was very under control. Head buzz is there (but not much burning). I just want...
    lnester7, Nov 3, 2012
  4. lnester7
    I know is not funny and don't mean to offend anybody but who wakes up with so many symptoms you have to choose what to tackle so you don't destroy the poor organs you have left working properly?!?!!? YOU got a winner! Today my cold / whatever virus/ Allergy, whatever combination kicking my butt and that has aggravated my CFS. I lost my voice. So do I take more mucinex to stop coughing? Is the...
    lnester7, Nov 1, 2012
  5. lnester7
    So like I have been sick, I was not thinking about going out for trick or treat. Then as my kid was getting ready she said "mom I wish chronic fatigue doesn't exist" I just wanted to cry right there with the feeling of frustration, I try to hide it but she can tell now when I am sick. I dragged myself out there even if it costs me months to recover from this one, I did one last push. I have...
    lnester7, Oct 31, 2012
  6. lnester7
    So I have been soooo sick since Friday, basically on crashed mode like when I started at the beginning of the year (my major crash). I got a cold or something still haven't figure out, not sure if it was a CFS relapse or a bug and just made CFS worse. Is scary that u can be doing so well and just a bug drag u back sooo much. So that kinda freaked me out. Is it me doing better just an illusion...
    lnester7, Oct 31, 2012
  7. lnester7
    So I am not around as much because I am doing so much more this days. Exercise: I walk little here and there but not formal exercise yet. Sleep: Was doing great but starting waking up like 3 times again, I am backing off benzos or because of the cpap mask leaking not sure the reason. My white tongue is much better, barely noticeable. Diarrhea comes sometimes but is mostly gone. More energy to...
    lnester7, Oct 16, 2012
  8. lnester7
    I have been on a good path the last few days. I went to GP and he increased my sleep meds to 300 to 400mg of trazadone. I tried 400mg and I only woke up once last night. I think I will stick to the 400mg. I added back my Vit Powder the last 2 days too. That thing really works for me and the fatigue. I went to mall yesterday (2h) and today I did my hair, Chores, walked 2miles w family!!! I had...
    lnester7, Sep 30, 2012
  9. lnester7
    So I haven't blog in a while. I was trying to give the immunovir start up side effects some time to stop. And like the first time it got better 10days into it. I am more stable emotionally, decided not to blog in those 10 days because my emotions were allover the place. I slowly have gotten better. Not sure what is working but I have changed a few things. They changed my CPAP settings and...
    lnester7, Sep 24, 2012
  10. lnester7
    So I increased to 3 pills of imunovir, I have been crying on and off all day, My emotions are all over the place. I remember the first time I started the drug and I know it will pass. So when I want to cry I just give in and in less than one minute I am done. It is weird to explain, then I feel happy. I look like a completely nut case. I am not sad really I actually think this is funny (I guess...
    lnester7, Sep 12, 2012
  11. lnester7
    So I have been working for 40h a week now, Week one did ok, week 2 in progress. So far I had 2 crashes. The first one was in a picnic, in the heat, ate ice cream and did everything I was not suppose to do. Only crashed for a few hours and rested on the weekend. Second crash was on Chinese food (IBS full swing, and the worse that can happen DID!!!!:oops: ). I have no idea what is going on but I am...
    lnester7, Sep 11, 2012
  12. lnester7
    So I started working. It went well, I was able to sit all day without feeling miserable. I didn't have a high pressure day, it was very easy day back. My HR has been really normal too since I started Imunovir again 2 days ago. I have more energy, and over all I can just do more. The burning in brain came back as soon as I started imunovir, so I think is a side effect of Imunovir for me!!!! When...
    lnester7, Sep 5, 2012
  13. lnester7
    So I have been pushing my limits, I wanted to provoke a small crash, not a full on crash but one of those 4hours, I wanted to test my new limits, how much I can do before I get a crash. I am happy to report that I have not have one!!! And I have push my limits a lot. I have been on the gym everyday about this week. I did 30min bike and 30min weights. I have gone to the groceries, I went on a...
    lnester7, Sep 2, 2012
  14. lnester7
    Today I found myself for the first in a long time dreaming of a future. I have always been a dreamer, planning the next big thing. I had great dreams before my last crash. I had been feeling so good that this thoughts were back. I am wondering if this is it, that I will be able to lead a somewhat normal life. Can I do my Master degree, or do my own business? Today I felt the most normal I have...
    lnester7, Aug 28, 2012
  15. lnester7
    This is meant to be a reflection, I was thinking last night, that CFS has humbled me as a person. I used to consider myself strong and independent. I got CFS and I did not handled it we AT ALL. I was so damn arrogant, and smart that I could solve it all. I was let down by myself and family, others really surprised me and I found support and help in very unexpected places. For the first time...
    lnester7, Aug 24, 2012