Blog entries from lnester7

lnester7 has a total of 109 entries.

  1. lnester7
    Every time I think I understand the gravity of my situation, something surprise me. So I went to the rec center today. I sat on the only bike that has a back rest so I can recline and be comfortable. About minute 2 or 3 a very disabled man walks in, his feet were twisted, it was like if his leg were a candy cane and the feet were to the outside, he kinda dragged on his feet. He puts the...
    lnester7, Jun 25, 2013
  2. lnester7
    It has been a rough week. I didn't get my usual rest on the weekend and got gluten back on diet for a bit so now I am not sure what is the real culprit, I will Go gluten free again and see what happens. I was testing back up adding it back and see if I felt difference. Overall I feel better without the gluten. The only thing I struggle to eat and I am without appetite so that was a down...
    lnester7, Jun 20, 2013
  3. lnester7
    OMG I have a cold, as I mention before colds get me in remission, I feel great (Apart fromt he cough) but ME wise I just wanna kneel and cry like a litttle girl and bless my luck. Just to have a day of clarity and control of my body again is amazing. Feel normal is just priceless. I don't think we really know how bad we feel because I guess we kinda get used to it. My only changes have been...
    lnester7, Jun 14, 2013
  4. lnester7
    I have physically taken a little dip. I was exercising doing weights and after I was done, my HR went up for a while while I was taking a shower, and I could not get it down. Is not like u can lay down on a public bathroom! so I hold it up for a long time until I could get back to office and put feet up. I have been down ever since, but not too bad. Now this has a whole psychological...
    lnester7, May 25, 2013
  5. lnester7
    I think I am finally getting a handle of how the movign target of energy works. This is huge, this is just a hypothesis at this point, will test and confirm later. So Observation number one: My energy or how easy I tire is a moving target from day to day. No matter how much I rest, I have to accomodate to that day limits, no matter how much progress I have made. So first thing Is I have is a...
    lnester7, May 21, 2013
  6. lnester7
    So I had the most wonderful day. I am very happy I never did anything crazy in the middle of my despair with CFS (I am very impulsive). I had energy to take my kid to do her favorite thing (pool) and after I went out on a date. Took a nap in between. I did my hair, I wore a dress, Hills and Make up!!!! One of the things in my list of things to do (CFS bucket list) when I got better. I was...
    lnester7, May 12, 2013
  7. lnester7
    I have been doing great for the most part. I am in a very high level of fucntioning. I work full time, I do not have to watch so much to keep my feet up and can make it throught the day without naping or rest time. I have been going to the gym everyday. I do very light weights, focusing on legs and abs. Try to walk at least 10min a day and if I don't go to the gym then I walk full 2.5 miles....
    lnester7, May 7, 2013
  8. lnester7
    I am back on imunovir. I have had Extremly good days and Extremly bad days. I think I am much more fucntional but when I get PEM or I go down, I do with the same level of suffering I did before. I was wondering why if everybody sees me doing better I feel not much progress, My conlcusion is because when I relapse or crash I am getting the same intensity of the balckslash of symptoms. So I am...
    lnester7, Apr 9, 2013
  9. lnester7
    Slipping back fast and furious, It is getting harder to do stuff that I was able to do, like standing not watching for how long, Not thinking about going up stairs, showers are getting hard, doing my hair. I got really sad there at first because I felt I was getting out, and my good ol CFS came back to remind me that I am at its mercy :cry: . But I tried to look the positive side, if I would...
    lnester7, Mar 21, 2013
  10. lnester7
    Overall I am doing great, Still on the same protocol. I have increased the Famvir to 2 halfs a day (one pill total) Will increase tomorrow to the next dose. I am doing great, I am at base before the major crash. I do not have much limitations (still no running) except when I skip the OI meds, The issue is that sometimes I forget, and like you cannot laydown on it, I just skip it after 4pm....
    lnester7, Mar 14, 2013
  11. lnester7
    I was doing great in the pasts weeks, I was basically back to base (an 8 out of 10) and some days I would feel a good 9. I exercised a lot and was going great. I had some virus cold or flue or who knows, spend the last 2 days feeling HORRIBLE. But today I am feeling great about a 9 (the 1 point is due to the cold not to ME) but again I go to remissions on colds. I got my results back from...
    lnester7, Mar 7, 2013
  12. lnester7
    Update: I am doing ok again. Had neck pain and headache for one day ( I think side effect of LDN), but I am back to base and I am doing more everyday. I changed a few things: Got off temazepan for falling sleep. Increased LDN to 3mg. Stopped OI training because I feel OK now that I am in the drug. I started exercising also, I change it everyday between pilates, walking, Will try leg weights...
    lnester7, Feb 12, 2013
  13. lnester7
    Full day again, a 12h work day. I exercised at lunch break, did yoga and contrary to popular believe, I did better than the people doing it for a while, I kept up well and did not find it a chore at all. I stopped when HR went over 115 (My AT) waited for HR to go back down but kept going. Just want to keep under AT because I don't know what to expect yet. I woke up every hour last night,...
    lnester7, Feb 5, 2013
  14. lnester7
    WOW talking about life changing moments. I have been on this drug for 3 days and I have not stopped, I mean I traveled today and one of the flights was a 4hr, went to work for a bit and I am still going.:lol: I just sit and enjoy what normal feels like, I hope this drug will keep working great for me because I feel so wonderful!!! I kinda stopped the OI exercises, Not sure I need them...
    lnester7, Feb 3, 2013
  15. lnester7
    I have a little more energy but more sleepy at the same time. I have wanted to die from the LDN pain! It was so rough and it took me emotionally to a place I have not been in a bit. But at the same time, I have hope on this drug, Is like even though I am having all these side effects, I noticed I can do much more. Is hard to explain but if I can live and I mean live in the sense of the word...
    lnester7, Jan 25, 2013