Blog entries from lnester7

lnester7 has a total of 119 entries.

  1. lnester7
    PACING sounds soooo good in theory. Sooooo On CFS I have learned not to push my limits but anything that needs from us to push that bit can get us out of our stable condition. So my dog run away, on a pretty steep hill. I knew the moment I went running after the dog that it was a bad idea, but is not like I could just sit there and let it go!!!! I have been doing great in general. Dealing...
    lnester7, Oct 7, 2013
  2. lnester7
    I am doing sooo good symptoms wise, I don't feel as sick with viral like stuff. I only deal with muscle pain (Mostly when I overdo) and head feeling (this one is mostly constant, like brain is tender) , I still get a lot of those crashes but I am smarter now to learn to wait it out BY RESTING. I get normal days more often than not. I sit on a chair and just exist. Is very exciting to be able...
    lnester7, Oct 2, 2013
  3. lnester7
    So, I came from work tired, I was with family in the table while having dinner. I was not symptomatic , just tired. So I put my head down in the table to rest. I don't remember if my husband moved me to the couch or if I did, All I know is I couldn't have made it to the bed upstairs. But when I am like that the first thing to go is the voice, so I couldn't ask to be put flat. It felt like...
    lnester7, Sep 6, 2013
  4. lnester7
    Personal note: Started day 2 on new sleep med. I feel very grogy in the mornings, Might need to lower dose. Overall I think has created a little fatigue. Will keep an eye, but I have spent the last 2 days sleepy. Still going strong, Brain clear, Not very symptomatic except for muscle stiffness in neck and muscle latic acid pain. Need to find a way to lower acidity?!?!?
    lnester7, Aug 23, 2013
  5. lnester7
    I am not sure what is working but I am going to count my blessings. I have had mostly very clear head, I feel almost normal. I am having a little bit of burning as I type but not as bad as usually is. I also have much more energy but I am not about to test my limits, I will let my body use it to repair and get better. So like I run to the gym the other 3 times I started getting better and...
    lnester7, Aug 20, 2013
  6. lnester7
    I don't know why or how but I am feeling a turn for the better. I fell absolutaley Amazing!!! I am not full of energy, that part is still the same, is more like general feeling in the day to day and symptoms. I felt constantly sick like something was not right and just abosolutaly like garbage, is jsut that we go sick for so long that you forget what it is to feel like human again, and I...
    lnester7, Aug 13, 2013
  7. lnester7
    I stopped the equillibrant to avoid going autoinmune. All casaxie has been clear for a while. I saw the CFS Dr. and I am waiting on results. Mostly all issues were the same and I am waiting on results. She asked me to try bioactive milk peptides for sleep. WIll se how that goes. The rest the same, I cut back on the 10 min walk to try to reduce the crasha and go cycle I got going, I added...
    lnester7, Aug 8, 2013
  8. lnester7
    I want to make sure I document my observations on the use of pedometer. This is keeping HR mostly under AT (115). I exceed my AT every time I go up the stairs (which I need to do to go to restroom). So I discover that keeping under my AT does not mean I have unlimited energy either. I have what I call a slow day. I go to work and do as Little walking as possible (except for the 10min slow...
    lnester7, Jul 20, 2013
  9. lnester7
    Ok so I always said that my pain felt like when you have lifted weights. But after I lifted weights (months back) I have a fresh memory of the two types of pain and made some observations. First I get this tired feeling, Numbness in left and frontal part of my brain. It gets extremely difficult to even exist, I need to sleep or just stop live and just rest it out, Is a very fast and brutal...
    lnester7, Jul 18, 2013
  10. lnester7
    This crap really sucks, I am going through a painful period, I am not sure if it is because I increased the LDN again to 3mg, I am sure it is not overdoing I have been resting a lot and taking it easy. I am so tired of feeling like crap most of the time, even when we say we feel good is crappy. I had terrible bout of nausea, and started throwing up and ended up in the hospital Saturday...
    lnester7, Jul 12, 2013
  11. lnester7
    Every time I think I understand the gravity of my situation, something surprise me. So I went to the rec center today. I sat on the only bike that has a back rest so I can recline and be comfortable. About minute 2 or 3 a very disabled man walks in, his feet were twisted, it was like if his leg were a candy cane and the feet were to the outside, he kinda dragged on his feet. He puts the...
    lnester7, Jun 25, 2013
  12. lnester7
    It has been a rough week. I didn't get my usual rest on the weekend and got gluten back on diet for a bit so now I am not sure what is the real culprit, I will Go gluten free again and see what happens. I was testing back up adding it back and see if I felt difference. Overall I feel better without the gluten. The only thing I struggle to eat and I am without appetite so that was a down...
    lnester7, Jun 20, 2013
  13. lnester7
    OMG I have a cold, as I mention before colds get me in remission, I feel great (Apart fromt he cough) but ME wise I just wanna kneel and cry like a litttle girl and bless my luck. Just to have a day of clarity and control of my body again is amazing. Feel normal is just priceless. I don't think we really know how bad we feel because I guess we kinda get used to it. My only changes have been...
    lnester7, Jun 14, 2013
  14. lnester7
    I have physically taken a little dip. I was exercising doing weights and after I was done, my HR went up for a while while I was taking a shower, and I could not get it down. Is not like u can lay down on a public bathroom! so I hold it up for a long time until I could get back to office and put feet up. I have been down ever since, but not too bad. Now this has a whole psychological...
    lnester7, May 25, 2013
  15. lnester7
    I think I am finally getting a handle of how the movign target of energy works. This is huge, this is just a hypothesis at this point, will test and confirm later. So Observation number one: My energy or how easy I tire is a moving target from day to day. No matter how much I rest, I have to accomodate to that day limits, no matter how much progress I have made. So first thing Is I have is a...
    lnester7, May 21, 2013