Blog entries from justinreilly

justinreilly has a total of 7 entries.

  1. justinreilly
    Lets focus on letting Chase know how deserving WPI is of the $500K in discretionary spending yet to be awarded! There is a silver lining in winning less than $100K in that we are eligible for the $200K discretionary spending prize. (There is also an additional $300K in discretionary spending for which I believe all the charities in round 2 are eligible). I sent the following letter in...
    justinreilly, May 26, 2011
  2. justinreilly
    This post is in response to a thread post made by CAA director Jennie Spotila on the "Suzanne Vernon, Agency Heads are Scared to Death" thread, post #66, p.7: http://forums.aboutmecfs.org/showthread.php?10202-Suzanne-Vernon-quot-%93Agency-heads-are-scared-to-death...if-XMRV-works-out-quot/page7 Jennie expresses serious frustration at the "laughable" things said about CAA and the people...
    justinreilly, Mar 2, 2011
  3. justinreilly
    Who Benefits Enough from What CAA does to Want to Give them $1M per Year? I find the whole anonymous donation thing very strange. My Dad was an executive director of a non-profit recently and with them and everywhere I've ever interacted with non-profits, they make the list of donors very prominent as a way of saying thank you to them. And they will list anonymous donors as "anonymous" on...
    justinreilly, Feb 28, 2011
  4. justinreilly
    Hi everyone, Tonight, Prof. Klimas will appear on the CBS Evening News to speak about a new study showing Spinal Cord inflammation in ME which is great. We need more studies showing encephalitis and myelitis in order to get people to call our disease ME rather than "CFS." As Klimas is in the news these days I am concerned that she will continue to promote GET and the very harmful...
    justinreilly, Feb 23, 2011
  5. justinreilly
    Kim McCleary's response on cnn.com to the PACE Trial results bums me out. http://www.cnn.com/2011/HEALTH/02/17/chronic.fatigue/ EDIT: This text of the CNN article added: The president and CEO of the Chronic Fatigue and Immune Dysfunction Syndrome Association of America, Kim McCleary, said the study focused on treatments that many in the United States have no access to. "I think it...
    justinreilly, Feb 18, 2011
  6. justinreilly
    Myra McClure said in an email to PR member Marty that she has stepped down from the "CFS" SEP! We did it! Now lets get the dentists and psychologists (except for Friedberg) replaced with virologists, retrovirologists, neurologists and immunologists, so send out this email. OK, OK, I'll let you celebrate and rest for a couple of days, but then come on back and do this two-minute advocacy....
    justinreilly, Feb 7, 2011
  7. justinreilly
    UPDATE: Myra McClure Stepped Down from the "CFS" SEP! We did it! We still need to get the dentists and psychologists (except for Friedberg) replaced with virologists, retrovirologists, neurologists and immunologists, so please refer to my latest blog post for an easy letter you can send on that score. Again: Yea Us!. New Post:...
    justinreilly, Feb 3, 2011