Blog entries from Dainty

Dainty has a total of 47 entries.

  1. Dainty
    He asked me if I had trouble with hygiene - I burst out crying. I've been trying to find out whether I can get home health care services from a government program. My therapist said I should be able to, so I spent 3 hours (!!!) on the phone last week being bounced around from agency to agency until I reached a dead end that said basically "we're overstaffed, leave a message and we might call...
    Dainty, Jun 17, 2014
  2. Dainty
    I've been officially diagnosed with Post Traumatic Stress Disorder from the trauma this illness has put me through. It was validating to hear that. My therapist mentioned that lots of people don't like the diagnosis of PTSD because they associate it with being in a war zone, to which I immediately retorted: "I've BEEN in a war zone!!" "Exactly!" was her reply. I think we're going to get...
    Dainty, Jun 3, 2014
  3. Dainty
    This past week I've connected with someone online who lives in my area. We're both enjoying the potential friendship that's forming, though it's too early to say for sure what will happen with that. He doesn't know I'm sick. ...but that's not to say I've been concealing the fact. We first began conversing about local places and events, and I just would casually say "I haven't been there"...
    Dainty, Jun 2, 2014
  4. Dainty
    I achieved a lot of accomplishments today. Big stuff, in my world. Little stuff, by normal people's standards. But I did it. I went to the dentist for a bite adjustment after major dental work yesterday that was causing me pain. I returned some items at a local shop and purchased a pair of socks that actually fits me. I now own one pair of socks and one pair of shoes that fits me....
    Dainty, May 8, 2014
  5. Dainty
    In a normal person's life, personal crises are occasional. They happen infrequently enough that one can excuse themselves from work or meetings or events or other responsibilities on account of that. I began to think of this the other day when I realized I'm now well enough to attend events, even on a bad day when I'm "dragged" through them lying down at every opportunity and opting out of...
    Dainty, Apr 17, 2014
  6. Dainty
    It wasn't out of laziness or anxiety that I hadn't seen a dentist. For the first few years I was too busy fighting for my life. The last time I'd seen a dentist was 4 years ago for a brief set of x-rays, but no work was done on the cavities because there were too many life-threatening things going on. I knew my teeth were getting worse, and I fought hard for them. Problem is, I'm intolerant...
    Dainty, Feb 28, 2014
  7. Dainty
    I was having a particularly bad night of insomnia, and someone I'd known around PR for a while was offering to teach me a technique to help it. Of course I was interested - I'd already tried everything else, I was game for just about anything. Except this. I'd always thought I was pretty good at the lifestyle management thing. I rested as much as I could, got up when the pain was too severe,...
    Dainty, Feb 14, 2014
  8. Dainty
    I still vividly remember the first few moments my PEM melted away. It was like magic. I was shocked; in awe. 6 years of that curse turning my mostly bedridden life into a special hell if I dared to overdo, ever. And sometimes ever without overdoing. Just for kicks. The only way I could ever really describe PEM is "fatigue so extreme it should be rated as a form of pain." The sheer...
    Dainty, Feb 13, 2014
  9. Dainty
    Sometimes I feel like my life is consumed with the task of cleaning up after myself. I was feeling all productive because I'd managed to put about half the dirty dishes in the sink to soak. Good day good day good day! My dish rack will only hold half those at a time; need to fix that. I have my eye on this totally cute and way too expensive one. Anyway, I had figured out another laundry...
    Dainty, Jan 27, 2014
  10. Dainty
    This past week... I ordered a bunch of stuff off Amazon that I needed. Like, truly needed. And I sent some of it to the wrong address. I had a conversation with a nice lady whom I thought was the one whose house I had stayed at last week. I only found out afterwards, from someone else, that she's someone I'd never met before. I called and left a voicemail for the wrong contact. Both their...
    Dainty, Nov 28, 2013
  11. Dainty
    Part 1 | Part 2 You have to understand, this is me on a bad day. I've been sleep-deprived for weeks and suffering noise exposure as I'm stuck in a house with people who don't get it and my sleep schedule is all over the clock. My brainfog has returned; I can barely hold a conversation and keep getting my online orders mixed up. I'm here on PR because I'm feeling like I need to talk to people...
    Dainty, Nov 19, 2013
  12. Dainty
    Part 1 found here. WARNING: potential bulimia trigger. I do not suffer bulimia but those who do should read with caution. This post talks about vomit and some other gross stuff. I made a lot of progress during last months' severe menstrual cramp episode. I've been having these badly since puberty, but last month was the first time I managed to stop resisting the vomit effect. I hate vomit...
    Dainty, Nov 19, 2013
  13. Dainty
    I cannot give an overview of the treatment approaches and healing process I have been going through the past year and a half. I've realized I can only give snapshots of where I am now and try to explain as I go along, which means you can only begin reading my story from the middle. I hope, however, that with enough snapshots I can give you an idea of how I have been finding health at long...
    Dainty, Nov 19, 2013
  14. Dainty
    Sorry I disappeared so suddenly on everyone without warning, and haven't been responding to messages. My improvement has continued in every area except for noise sensitivity, which is causing major issues. When I can spend just a week living alone without noise nearby my functionality improves more than 50% and my brainfog all but disappears. This didn't used to be the case, mind you, but...
    Dainty, Nov 17, 2013
  15. Dainty
    Some who have been following my story want to know how I'm doing. The short answer is, I'm doing fine. A good kind of fine. Stable and in a far more improved condition than I was 6 months ago. It's tempting to leave my answer there, but since I have been sharing so much about this treatment, I'm beginning to feel compelled to share a bit beyond my comfort zone. The truth is, in order for...
    Dainty, Nov 17, 2012