Blog entries from Dainty

Dainty has a total of 56 entries.

  1. Dainty
    I feel like I should keep writing these even though they seem somewhat boring. Progress is slow, and I work hard for it in ways people don't see. But it's happening, and it feels like something I wish I'd documented more when I was more severe. Last month I wrote about a breakthrough regarding my abdomen. The very gentle manipulation techniques my DO taught me caused immense relief and...
    Dainty, Oct 9, 2017
  2. Dainty
    (I originally published this on private social media about 9 months ago. It is geared towards people unfamiliar with our types of struggles. I realized some here might find it helpful. Enjoy!) Plants reach for the light. It's instinct. The sun makes them feel good. Alive. Warm fuzzies. No plant needs to be taught that the light is good for them. They all know it. They all want it. Most...
    Dainty, Sep 27, 2017
  3. Dainty
    Last week was hell. It's the hardest I have pushed myself since my years of being mostly bedridden. That was the case even before the viral bug with its 101 degree fever, or the next day's job transforming from 2 hours to 6. It was the case even aside from the PR stuff. It just sucked, period. But I got through it. And today, my 5th day of resting, I'm about halfway to baseline. I want to...
    Dainty, Sep 22, 2017
  4. Dainty
    I was participating in one of the fiery threads when I got this thrown at me: We all know you are sucking up to the board for a moderator job. What a weird and inflammatory thing to say. We'll need to put aside the fact that I'm not interested in moderating. Been there, done that, didn't even get the T-shirt. I've moderated on a lot of forums in the past. I can do it, but it's not fun. I...
    Dainty, Sep 16, 2017
  5. Dainty
    I was raised by a mom that's fluent in ancient Greek and taught logic classes on the side. From her I learned that conflict resolution was all about getting to the bottom of The Truth, often reasoning yourselves to death along the way. Emotions were entirely unhelpful to conflict resolution. They were dismissed as immature and illogical. It's all about being reasonable, you see. It's all...
    Dainty, Sep 7, 2017
  6. Dainty
    I went in for another treatment about a week ago. I hadn't been there in a while, due to expenses. But I knew my body needed it. He taught me another technique to do on my abdomen. Now, I have been having folks work on my abdomen for....at least a decade now? A natorupath said it was literally "hard as rock". Massage therapists freaked out. Doctors would reason that so long as they're hearing...
    Dainty, Sep 1, 2017
  7. Dainty
    I used to share a lot of these, but it's been a while. I'm still "doing the process" of healing, as my osteo and those close to me have come to call it. It's anything but easy. If I stop doing it, I am certain my improvement will no longer continue, and over time I would relapse after a major stressor. I wrote a lengthy post here about how I suspect I have some sort of cavitation or infection...
    Dainty, Aug 8, 2017
  8. Dainty
    I'm sitting here sipping hot Egyptian Licorice tea watching the morning rays topple through the window. I can't remember the last time I felt this relaxed, this....settled. I leave for work in half an hour, but I've already got dressed, brushed teeth, fixed and ate a baked potato, not to mention pumped up my tire that went flat last night. My partner and I have moved into the RV. I finally...
    Dainty, Jun 25, 2017
  9. Dainty
    I got a job! This is significant, as it's the first time in my life I have ever been an employee. Previously I was always too ill, ever since a few months before my 17th birthday. I'm 28 now, and I just got my first job. I've been freelancing for over a year now, and I still have some steady gigs with that. But this is a proper job! It's part time work house-keeping at a bed and breakfast....
    Dainty, Jun 11, 2017
  10. Dainty
    (Hope you all don't mind me posting something here that has nothing to do with ME/CFS. There's been a major change to my life via my partner's job and I felt it ought to be shared as part of my journey.) I don't want to be tough. I don't want to be strong. I don't want to be "okay". I want to SCREAM and cry and generally freak out. Because I fucking love you and I don't want to see you get...
    Dainty, May 18, 2017
  11. Dainty
    So I have a new primary doctor. I never really expect the doctors who take medicaid to actually help much, but I've found that they can at least help a bit with palliative care and some secondary issues. This one, a naturopath completing her residency, seems to be going above and beyond to tackle my case. She sent me a message via their system. "I see you saw a gastroenterologist back in...
    Dainty, May 12, 2017
  12. Dainty
    Many of you are familiar with the basics of my story. Mostly bedridden for 8.5 years, then significant improvement from a combination of n advanced form of cranial osteopathy, meditation techniques, lots of rest and intense lifestyle changes. The past 3ish years my improvement has continued, but been gradual as I struggle to survive on the streets in my van. My osteo says if I just get some...
    Dainty, May 5, 2017
  13. Dainty
    So, I recently got 3 teeth pulled. They were all infected, so they had to go. Predictably, my body crashed - I slept about 22 hours/day for 3 days straight. I haven't left this room in 4. He held my hand through the entire procedure. When I was traumatized from the immense pain and had them stop to give me a break while I sobbed, he hugged me until I felt ready to continue. He has kept...
    Dainty, Feb 27, 2017
  14. Dainty
    Today I watched that amazing TED talk by Jennifer Brea for the first time. And it all comes flooding back. The non-stop wall of pain. The crushing fatigue, so severe and causing so much suffering I think it should be labeled a form of pain, too. The desperation. The confusing mish-mash of symptoms that ebbs and flows with no discernible predictability. Years of not seeing the light of day....
    Dainty, Feb 21, 2017
  15. Dainty
    Intro Many of you once knew me as one of the sickest patients on here. I can still remember the days where all I could handle was the chatroom. And when I mentioned I couldn't read the forums people would get all confused as to why - because it was too much for my brain! Mostly bedridden, mostly roombound, severe MCS doubly complicating everything, only able to eat 5 ingredients, it was a...
    Dainty, Dec 25, 2016