Blog entries from Andrew

Andrew has a total of 19 entries.

  1. Andrew
    I'm pretty sure I mentioned this in the PEM subforum, but tonight I feel compelled to blog about it. Maybe it will help to blog this. But I just had to get off the phone after sixteen minutes of talking. I was wiped out. This has been a pattern for me for months now. I'm on an anti-androgen drug as part of cancer control and it's kicking my butt. All my ME/CFS symptoms are are at least twice...
    Andrew, Feb 19, 2018 at 10:36 PM
  2. Andrew
    Tonight the loneliness is unbearable.
    Andrew, Feb 19, 2018 at 9:36 PM
  3. Andrew
    In the song "Old Man River" is a line that says "Tired of living, but scared of dying." This illness has taught me how that feels. The good news is I don't feel that way all time time.
    Andrew, Aug 17, 2017
  4. Andrew
    It's so nice when something good happens in a life that seems like never-ending bad news. But this time it ended up okay. Usually when cold weather comes on I develop a cough that just goes on and on for months. I feel miserable and doctors won't treat because they say I have no sign of infection. My new lung doctor was no different. But I went in for a routine check with him and my cough...
    Andrew, Jan 30, 2017
  5. Andrew
    The thought that I might end up with dementia is scarier than the certainty that I have cancer.
    Andrew, Jan 6, 2017
  6. Andrew
    I got one of those printers that also copies, faxes, and scans. This has made my life so much easier. For example, when my doctor got my biopsy results he called me and then faxed them to me right away. I called the place that has the samples and asked them to fax me a form so I could request they send them out for a second opinion. They faxed me the form and I scanned it to PDF. I then filled...
    Andrew, Jan 4, 2017
  7. Andrew
    I was diagnosed with prostate cancer about 8 years ago and because it was low-grade I entered a program of active surveillance. But my PSA recently shot up and a high power MRI showed problems. I go for biopsies Wednesday to confirm this and see how aggressive it is. Some people are inclined to pray, others send positive energy, etc. If you are inclined to do any of these, I could use your...
    Andrew, Oct 28, 2016
  8. Andrew
    Modern clean interfaces cause me perceptual problems because I find it hard to tell where the webpage ends and the browser begins. I could describe my odyssey with browsers, but instead I'll jump to the bottom line. I started using Vivaldi browser a few days ago. It allows me to change colors so I don't have a gray browser blending with all the gray websites. In fact, I got rid of all the...
    Andrew, Sep 12, 2016
  9. Andrew
    Like many of you, I find it very hard to sleep. In the morning I felt like I got only 1 hour of sleep. But that changed when I started taking prescription sleeping pills and melatonin. With that combination there were many nights I felt like I got real sleep and enough sleep. For the last few months this has become less and less effective. So I added Doxylamine succinate. And it has been...
    Andrew, Aug 20, 2016
  10. Andrew
    I don't know what it's like were you live, but the doctor offices out here keep it very cold in the exam rooms. I always bring a jacket, but at my age my legs can't take the cold. So for my last visit, I took a mylar space blanket. I don't know if you have seen these, they are very thin and usually silver. After lying down on the exam table I put it over me. It was so light it felt like it...
    Andrew, Aug 1, 2016
  11. Andrew
    When I was treated for cancer, I had to go for radiation treatment five days a week for seven weeks. In addition, I had to go to a different office once a week for chemotherapy. This was very hard on me, and made worse by my ME/CFS. The most difficult was dealing with orthostatic intolerance. When I’m standing I feel like I’m about to pass out. When I’m sitting I feel very lightheaded. And...
    Andrew, Mar 20, 2016
  12. Andrew
    Life is not fun if you can’t sit up without feeling like you’re going to pass out. And if you sit for a while you start to get a horrible body feeling like something with your body is horribly wrong. Life is not fun if a friend visits you and you have to ask them to leave after 15 minutes because chatting with them is causing symptom flares that drive you into bed. Life is not fun if you lie...
    Andrew, Feb 7, 2016
  13. Andrew
    This article offers tips for dealing with food, including shopping and preparation. Because everyone's circumstance is different, there is no one-size-fits-all-solution. For example, some people can only eat certain types of organic food, while others can eat a wide range of food. What I will cover here is what I've found helpful for me in the hopes that it can help some of you. Shopping in a...
    Andrew, Aug 11, 2011
  14. Andrew
    There are people whose job is helping disabled people. The job title for these people is Caregiver. These are people who will help you with almost everything in your day to day routine. They will do your laundry, take out your trash, prepare meals, help you with your mail, help you fill out medical forms, drive you to the doctor, run errands, do light house work, keep you company, and more....
    Andrew, Dec 27, 2010
  15. Andrew
    It occurred to me that it might be easier to explain CFS to family and friends by asking them to watch a movie on the web. The first one is a 12 minute news special. It would not be much of a time investment for someone to watch. [media] The next one is a 1 hour CFS documentary from 1993. It's interesting to notice that nothing has really changed for us. [media]
    Andrew, Oct 25, 2010